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Outrun the Moon

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Stacey Lee

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“I have referred to it as a gift--something for which others with this affliction have taken me to task. I was only speaking from my own experience, of course, but I stand partially corrected: if it is a gift, it's the gift that just keeps on taking. Coping with relentless assault and the accumulating damage is not easy. Nobody would ever choose to have this visited upon them. Still, this unexpected crisis forced a fundamental life decision: adopt a siege mentality--or embark upon a journey. Whatever it was--courage? acceptance? wisdom?--that finally allowed me to go down the second road (after spending a few disastrous years on the first) was unquestionably a gift--and absent this neurophysiological catastrophe, I would never have opened it, or been so profoundly enriched. That's why I consider myself a lucky man.”

“Although I owned a boat, I had no sonar, metal detector or any practical method of surveying the ocean bottom. With an incurable illness, no prospect of financial reward, little chance of success, brain surgery looming, and one child in college with another about to start, I was not in a position to spend thousands of dollars on a search. Still, desperate for a distraction, anything to pry my focus away from the disease, I decided—the hell with Parkinson’s. I’m doing it.”

“Parkinson’s disease in its later stages can torment with its unpredictability. It seizes you then lets you go from hour to hour or later, even from minute to minute… the medicines are partially effective – tablets enhance the supply of dopamine, the key neurotransmitter that is inexplicably depleted in this illness… in a bad trough someone with Parkinson’s may freeze completely. Pg252”

“Yesterday, I had a dream... A dream I have had since long ago. In that dream, we had yet to turn 13. We were in a vast countryside, completely covered with snow. The lights of the houses extended far into the distance, a dazzling sight. We walked on the thick caprpet of fresh snow, but did not leave any footprints. And like that... 'Someday we will be able to watch the cherry blossoms together again'. Both of us, without any doubt... That's what we thought.”

“When reaching for the stars, beware of those who want to cut off your hands.”