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Quote by Leonard A. Jason

“individuals with ME/CFS experience different types of fatigue than what are reported in the general populations”

Quote by Leonard A. Jason

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Leonard A. Jason

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“For 13 years now I have suffered. I have lost my job that I loved, my financial independence, my social life, my friends, my ability to leave the house when I want to or do the things when I want to instead my body does the dictating now.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis M E Cfs M E

Author:Tracey Browett

“Whether it’s a team, a company, a classroom, or a family, everything begins to change when excellence becomes the expectation and the mindset. It’s never accidental. It’s always intentional.”

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Book:Finish Empty: All You Got. Every Day.

Source: Finish Empty: All You Got. Every Day.

“I have seen three beautiful young girls in their 30's within the last few years pass away due to this illness, who not only fought their battles with this illness but who played an important role in raising awareness of ME. Yes you can die as a result of having ME if you become at the severe end of it which 25% do.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis M E Cfs M E

Book:Severe ME : Notes for Carers

Source: Severe ME : Notes for Carers

“I wake up every morning, thinking that this can't really be happening. What parallel universe have I entered?”

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Book:Severe ME : Notes for Carers

Source: Severe ME : Notes for Carers

“Over the years, I have cared for loved ones with advanced Alzheimer, late stage cardiovascular and renal disease and Stage 4 cancer. But none of those experiences prepared me for being a carer for a Severe or Very Severe ME patient. The breadth, severity and unprediciability of the symptoms and dysfunction from one person ro the next and from one day to the next can be hard to comprehend and mainstream medical education doesn't help.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis M E Cfs M E

Book:Severe ME : Notes for Carers

Source: Severe ME : Notes for Carers

“How do I deal with my own frustration and outrage at the injustice of what has happened to my son and all ME patients and with my own inadequacies and inability to change that?”

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Book:Severe ME : Notes for Carers

Source: Severe ME : Notes for Carers

“The label ‘Chronic Fatigue Syndrome’ was first proposed by Holmes et al. (1988) of the Centers for Disease Control (CDC). This name was recommended to replace that of a number of terms that implied a causal pathology (e.g. ‘Myalgic Encephalomyelitis’, ‘Post-Viral Fatigue Syndrome’ and ‘chronic Epstein-Barr virus syndrome’), as there was a lack of correlation between biological markers and symptomatology. Hence, this new label reflected the prime clinical characteristic of the condition without alluding to an underlying physical aetiology and, in turn, the definition was based upon signs and symptoms of the patient group. However, many individuals use the term Myalgic Encephalomyelitis (indicating muscle pain and inflammation of the brain), a fact that is reflected by the titles of the two largest charitable organisations in the UK, the ME Association and Action for ME.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis M E Cfs M E

Author:Megan A. Arroll

“Malaise” is a general body discomfort or weakness, often marking the onset of an of infection/flu-like illness or other disease. Fatigue and flu-like symptoms are linked to activation of the immune system and research scientists are in the process of unraveling these mechanisms in ME/CFS.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Malaise M E Cfs M E Post Exertional Malaise

Author:Alison C. Bested

“To differentiate between symptoms of depression and anxiety secondary to ME/CFS and psychiatric disorders, ask the patient what they will do the next time they have a “good day”. A patient with ME/CFS will have a long list of ideas whereas a patient with major depressive disor- der will say they can not think of anything they enjoy any more. Patients with an anxiety disorder will have a list of reasons why they won’t be able to do or enjoy the activities.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis M E Cfs M E

Author:Alison C. Bested

“ME/CFS is a complex condition that affects every organ system in the body. There is evidence of inflammation at the cellular and biochemical levels: in the muscles, brain and spinal cord in patients with ME/CFS. The name for this illness has had a huge impact on the medical, scientific and patient communities – how it is viewed and how patients are treated by the medical community (160).”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis M E Cfs M E Chronic Illness Stigma

Author:Alison C. Bested