Best Cfs Quotes | Short & Famous Sayings

“CFS IS A MISLEADING LABEL Many argue that the label "Chronic Fatigue Syndrome" contributes to the disorder's lack of legitimacy because it emphasizes only one symptom "fatigue," which is such a common and non-specific symptom. The name fails to convey that the mental and physical fatigue in CFS are not substantially relieved by rest nor that exertion worsens symptoms. The lack of mention of physical signs and symptoms in the label allows the inclusion of a very heterogeneous group of less severely ill patients to be considered under the rubric of CFS. As a result many research hypotheses and findings may not pertain to patients with tightly defined CFS who have multisystemic involvement.”

Fatigue Chronic Illness Cfs Chronic Fatigue Syndrome Me Cfs Chronic Fatigue Minimization Cfs Me

Author:Roberto Patarca Montero

“Multiple allergies are perhaps the most obvious sign of immune system overreaction. Patients with CFIDS frequently have a past history of allergies, implying that their immune response is genetically primed for a vigorous response. Other patients with CFIDS develop allergic symptoms after the onset of their illness. CFIDS patients have a hair trigger for allergies.”

Cfs Chronic Fatigue Syndrome Allergies Cfids Dr Bell

Author:David S. Bell M. D.

“The most important limitation of [clinical] guidelines is that the recommendations may be wrong... Practices that are sub-optimal from the patient’s perspective may be recommended to help control costs, serve societal needs, or protect special interests (those of doctors…or politicians, for example).”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Nhs Cfs Me Cost Cutting Invisible Illness Quotes Illness Stigma Nice Guidelines Societal Control

Author:Steven H. Woolf

“Historically in the literature CBT [Cognitive Behavioral Therapy] was inappropriately touted as a cure for patients with ME/CFS if they changed their “belief system”. ME/CFS is a physical illness and not a psychological illness, therefore CBT cannot cure ME/ CFS. What CBT can do is to help patients cope with being chronically ill and manage their emotional reactions better so that they do not waste valuable energy on worrying or feeling guilty about things that they cannot control. We like to think of CBT as “emotional energy conservation”.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Cognitive Behavioral Therapy M E Cfs M E Cognitive Behavior Therapy Cbt Pace Trial

Author:Alison C. Bested

“Jay Levy saw ten women," the doctor later recalled, "And he thought they were all hysterical. Then he saw a man, whose complaints he took seriously.”

Doctors Me Cfs Doctors And Patients Male Chauvinism Cfids Male Chauvenist

Book:Osler's Web: Inside the Labyrinth of the Chronic Fatigue Syndrome Epidemic

Source: Osler's Web: Inside the Labyrinth of the Chronic Fatigue Syndrome Epidemic

“This is an example of pacing when shopping. Break shopping into multiple steps: 1) rest at home before driving the car to the store, 2) drive to the store, 3) rest, lying down in the car after driving to the store, 4) shop for 30 min in the store, 5) rest lying down in the car before going home, 6) drive home and 7) rest at home.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Pacing M E Cfs M E Spoon Theory Spoonie

Author:Alison C. Bested

“In July and August 2011 Simon Wessely ran a media campaign with the BBC and the broadsheets, successfully vilifying patients who had justifiably criticised his research. In his case, the marginalisation of ME patients was not ‘unintentional’. It was active and deliberate.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Media Bias Marginalization Invisible Illness Stigma Iatrogenic Vilification Simon Wessely Bbc Bias

Author:Horace Reid

“Many doctors (and medical students) display uncertainty about whether or not CFS/ME is real…Patients with CFS/ME often experience suspicion by health professionals…The (often unintentional) marginalization of many CFS/ME patients represents a failure in medical professionalism, one that may lead to further ethical and practical consequences both for progressive research into CFS/ME and for ethical care... With one exception, doctors attending the seminar were either defensive or silent. In their eyes, the ME patients present were conforming to stereotype (angry, unscientific, unreasonable) and therefore they – the doctors – would not engage with them. Paradoxically, these doctors were themselves conforming to another stereotype, as described by the speaker: ‘Knowledge-formation is also influenced by social and cultural factors. Such encounters have an inherent power differential; there is significant potential…to be unjust from an epistemic point of view.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Marginalization Invisible Illness Stigma Power Imbalance Iatrogenic Unethical Treatment Power Differential

Author:Charotte Blease

“He has so little energy in his body that he can only walk to the bathroom on the other side of the hallway twice a day. After a few meters he is worn out, much worse than after the marathons he used to run. He was a triathlete, he earned a brown belt in judo, became Dutch champion in hockey, until he contracted pneumonia in 2005 and never recovered. Ever since, he has a headache, vertigo, and insomnia, but worst of all the fatigue: after minimal effort his muscles would lose all their strength and take days to recover. Only after a few years did he get a diagnosis: Chronic Fatigue Syndrome (CFS).”

Walking Exercise Marathon Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Invisible Illness Severe Me

Author:Ellen de Visser

“ME is a neuroimmune disease that, contrary to common misconceptions, is not characterised by chronic fatigue, but rather by a severe exacerbation of symptoms which manifest after a minor physical or mental exertion. This hallmark symptom characteristic of ME, known as Post-Exertional Malaise (PEM), can persist for days, weeks or consequently be a the trigger for a relapse or deterioration.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Me Cfs Quotes Post Exertional Malaise Pem

Author:Anil van der Zee

“ME’ as a medical entity was later supplanted in the 1980s by psychiatrists such as Simon Wessely, replaced by the label ‘chronic fatigue syndrome’; a fatiguing syndrome of unknown origin that exists, in part, as a result of dysfunctional illness beliefs, as well as social trends and social care systems that reward illness seeking behaviours.”

Discrimination Chronic Illness Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Me Cfs Quotes Psychologization Simon Wessely Wessely School

Author:Charlotte Blease

“Studies also show that doctors may view ME/CFS patients as hostile or combative when they challenge the incumbent biopsychosocial model of ME or CFS. Yet rather than feeling threatened or worse still, viewing the patient as uncooperative, there is an opportunity to discuss the limitations of medical knowledge. Here, we believe there is an ethical duty for candour and honesty: indeed, where there are clear gaps in medical knowledge the patient voice should have even more standing.”

Chronic Illness Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Me Cfs Quotes Psychologization

Author:Charlotte Blease

“As a doctor who has been bedridden with severe ME for a long period after GET caused a severe relapse from which I have not recovered, I am in a unique position to combine the patient and doctor perspective...”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs World Health Organization Neurasthenia

Author:Mark Vink

“Biopsychosocial discourse often portrays these patients as possessing unhealthy personality traits, such as ‘maladaptive perfectionism’ [67,68]; yet such assertions are not well supported, many studies find no significant differences between ME/CFS patients and the general population with regard to distinctive personality profiles [69–72]. A Swedish study of physicians’ attitudes to CFS found that physicians often downgrade the seriousness of this illness to ‘non-disease’ status and view patients as being ‘illness focused’, ‘demanding’, and ‘medicalising’ [73]. Given community-based doctors have limited knowledge of ME/CFS [74] and doctors display high levels of skepticism in this illness domain [75], it is unsurprising that many patients with ME/CFS report problematic clinical interactions [29–31,76]. Patient surveys conducted by patient organizations confirm high levels of patient dissatisfaction in the medical encounter.”

Injustice Bias Stigma Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Invisible Illness Stigma

Author:Keith Geraghty

“When it comes to hierarchies of illness, evidence shows that chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME), features at the bottommost end of the medical “favoured” list. In the 1980s, newspapers helped coin the dismissive label “yuppie flu”; today, ME/CFS sufferers are still being referred to psychotherapists to work on their “faulty” illness beliefs.”

Chronic Illness Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Me Cfs Quotes Psychologization

Author:Charlotte Blease

“The description given by a leading gastro-enterologist at the Mayo Clinic [of patients with chronic fatigue syndrome] remains accurate: 'the average doctor will see they are neurotic and he will often be disgusted with them'.”

Discrimination Cfs Chronic Fatigue Syndrome Me Cfs Cfs Me Medical Neglect Wessely School Chronic Fatigue Syndrome Stigma

Author:Simon Wessely

“Validation is needed from the doctor ... once that is granted, the patient may assume the privileges of the sick role (sympathy, time off from work, benefits, etc.).”

Discrimination Disbelief Disdain Cfs Chronic Fatigue Syndrome Me Cfs Medical Neglect Chronic Fatigue Syndrome Stigma Disbain Sick Role

Author:Simon Wessely

“The new name 'Chronic Fatigue Syndrome' is far too benign. It trivialises. How seriously would you take something called 'Chronic Thirst Syndrome'? And yet, diabetes is a very serious condition. 'Disabling Fatigue and Immune Dysfunction Syndrome' does a bit better; while more research should allow something more specific. (Thompson, 1992:27)”

Cfs Chronic Fatigue Syndrome Me Cfs Me Cfs Quotes Invisible Illness Stigma Invisible Illness Quotes Biopsychosocial

Book:Chronic Fatigue Syndrome

Source: Chronic Fatigue Syndrome

“I wish to clarify the situation regarding the classification of neurasthenia, fatigue syndrome, post-viral fatigue syndrome and benign myalgic encephalomyelitis. Let me state clearly that the World Health Organization (WHO) has not changed its position on these disorders... Post-viral fatigue syndrome remains under the diseases of nervous system as G93.3. Benign myalgic encephalomyelitis is included within this category. Neurasthenia remains under mental and behavioural disorders as F48.0 and fatigue syndrome is included in this category. However, post-viral fatigue syndrome is explicitly excluded from F48.0.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs World Health Organization Neurasthenia

Author:Benedetto Saraceno

“My very high lactate levels after this trivial walk also show that this trivial walk is very strenuous exercise for me which I have been doing twice a day for a number of years and if exercise would really be the answer to this disease, on the one hand I would not have fallen ill with this disease and on the other I would have long exercised myself back to full fitness as my very high lactate levels show that I do my upmost.”

Exercise Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Me Cfs Quotes Graded Exercise Therapy Stopget

Author:Mark Vink

“The study by Falk Hvidberg et al. [69] confirms the findings from the health status report by Komaroffet al. from 1996 [70]. It also means that nothing has changed in the health situation of ME/CFS patients in the last 20 years and that means that the current 2 available treatments, CBT and GET, which have been heavily promoted for more than 20 years as the treatments for ME/ CFS, which most ME patients have tried, because they desperately want to get better, are not effective at all, or even harmful, as patients have been saying for a long time [32] which was confirmed and objectified by Black et al. [31].”

Exercise Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Me Cfs Quotes Graded Exercise Therapy Stopget

Author:Mark Vink

“It is [Simon] Wessely’s often-unconcealed “derision” directed towards people with ME -- a disease from which people die and which appears on Coroners’ death certificates as the cause of death -- which arouses such anger, an anger that is not confined to patients in the UK but encompasses medical scientists in other countries whose decision-makers have come under Wessely’s thrall.”

Controversy Authoritarianism Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Derision Authority And Attitude Simon Wessely Hate Campaign

Author:Michael Hanlon

“I have no problem with not understanding the exact mechanism of the symptoms of CFS…I do have a problem with the lack of respect given patients with poorly understood neurological disease.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs

Book:Faces of CFS

Source: Faces of CFS

“The whole idea that you can take a disease like this and exercise your way to health is foolishness. It is insane.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs M E Cfs Me

Author:Paul Cheney

“The evidence of inflammation in people with ME/CFS is important because the incremental aerobic exercise recommended by the Wessely School and encapsulated in NICE’s Clinical Guideline 53 is contra-indicated in cases of inflamed and damaged tissue and inevitably results in post-exertional relapse with malaise, which is the cardinal symptom of ME/CFS.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs

Author:Margaret Williams

“The pathophysiological consequences of ME/CFS are multi-systemic and may include: immune and neuroendocrine abnormalities; brain dysfunction and neurocognitive defects; cardiovascular and autonomic disturbances; abnormalities in energy production including mitochondrial dysfunction, and changes in the expression of certain genes.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Neurological Problems

Author:Anthony Komaroff

“CBT is a much publicised and debated psychotherapeutic intervention for ME/CFS….The premise that cognitive therapy (eg. changing ‘illness beliefs’) and graded activity can ‘reverse’ or cure this illness is not supported by post-intervention outcome data. In routine medical practice, CBT has not yielded clinically significant outcomes for patients with ME/CFS.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Cognitive Behavioral Therapy Graded Exercise Therapy Invisible Illness Stigma Cbt Illness Beliefs Graded Exercise Iatrogenic Harm

Author:Anthony Komaroff

“For the last 48 years, myalgic encephalomyelitis (ME) has been formally classified by the World Health Organisation as a neurological disorder but for the last 29 years a group of UK psychiatrists (known as the Wessely School) have denied it exists other than as an aberrant belief; they insist that it is a mental (behavioural) disorder that can be cured by graded exercise and “cognitive re-structuring”.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Neurological Disorder Invisible Illness Stigma Simon Wessely Neurological Problems Wessely School

Author:Margaret Williams

“people with ME/CFS do not have “fatigue as their main symptom”; they have post-extertional fatigability accompanied by malaise as their main symptom (their voluntary muscles do not work properly and are exquisitely painful after exercise)”

Fatigue Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Malaise

Author:Margaret Williams

“(The blood vessels) must be constricted so tight in the brain that little blood gets through. Perhaps it is one of the hormones that constricts blood vessels. Perhaps an infection of the blood vessels. Perhaps it is an excessive sensitivity of the blood vessels to adrenaline….CFS is a devastating physiologic process that undermines the body’s energy and the brain’s cognitive ability….CFS is not…an illness behaviour for lazy people. The consequences of this illness weigh heavily not only on the victim, but also on family, community and society.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Invisible Illness Quotes Illness Stigma

Book:Faces of CFS

Source: Faces of CFS

“we see cardiac diastolic dysfunction in almost every case... there are patients whose diastolic dysfunction is so low/poor that they would fit well into a cardiac ward awaiting transplant... The whole idea that you can take a disease like this [M.E./Chronic Fatigue Syndrome] and exercise your way to health is foolishness. It is insane.”

Exercise Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs M E Cfs Graded Exercise Therapy

Author:Paul Cheney

“Luckily, we are seeing less and less post-exertional malaise, the symptom that stops Danny’s body and brain recovering properly after expending any energy, even just watching TV.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Invisible Illness M E

Author:Sonya Chowdhury

“When people with ME/CFS report symptoms of post-exertional malaise, those symptoms are independent of emotional distress, but when the general population report what they think are post-exertional malaise symptoms, their symptoms of post-exertional malaise are significantly related to emotional distress. It is possible that because healthy individuals experience a relationship between emotional distress and post-exertional malaise, they might believe that these two domains are connected for themselves and by inference with patients with ME/CFS, when in fact it is not the case. This ultimately might blur the ability of healthy controls to understand the experience of post-extertional malaise for people with ME/CFS.”

Cfs Chronic Fatigue Syndrome Me Cfs

Author:Leonard A. Jason

“Severe, persisting fatigue is a prominent symptom of Myalgic Encephalomyelitis/chronic fatigue syndrome (ME/CFS), but individuals with this illness frequently report the occurrence of unique fatigue states that might be different from conventional symptoms of fatigue.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs M E Cfs M E

Author:Leonard A. Jason

“In summary, patients with CFS are not “deconditioned”. Neither their muscle strength nor their exercise capacity is different from that of other sedentary members of the community (>70%). We remain unaware of any incontrovertible evidence that the various “exercise training” programs suggested in previous articles improve either the physiological or clinical status of people with CFS.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Graded Exercise Therapy Graded Exercise

Author:Garry C. Scroop

“To replace ME/CFS, the [Institute of Medicine] committee proposes the name systemic exertion intolerance disease, or SEID. This name captures a central characteristic of the disease: the fact that exertion of any sort— physical, cognitive, or emotional—can adversely affect patients in many organ systems and in many aspects of their lives.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs M E Cfs Chronic Fatigue

Author:Ellen Wright Clayton

“There are many reports that suggest a biomedical basis for post-exertional malaise. This is inconsistent with the assumption that there is pathological avoidance of exertion in ME/CFS, and makes it difficult to believe that exercise leads to improvement.”

Exercise Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs M E Cfs Graded Exercise Therapy Pace Trial

Author:Sten Helmfrid

“Many patients with cancer are depressed, yet depression is not the cause of cancer.”

Cancer Cfs Bell Ms Cfids

Author:David S. Bell M. D.

“We've got to do better, I thought. This story of injustice had continued on far too long. It's time for the misinformation and stigmatization surrounding ME/CFS to stop. Our leaders need to step up to the plate, acknowledge past mistakes, and fix them. All the evidence is there in black and white. More research funding to find a cure would prevent so much unnecessary suffering and save lives.”

Science Research Medical Fatigue Me Chronic Illness Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Stanford

Book:The Puzzle Solver: A Scientist's Desperate Quest to Cure the Illness that Stole His Son

Source: The Puzzle Solver: A Scientist's Desperate Quest to Cure the Illness that Stole His Son

“With a strange logic, [Rod Liddle] asserts that because ME patients deny that they have a psychiatric disorder, this proves they have a psychiatric disorder. Meanwhile, people are quietly dying of ME. ME sufferer Emily Collingridge died, aged 30; Victoria Webster died at just 18. People don’t die from ‘exercise phobia’. ME is not ‘lethargy’ and ‘aches and pains’, as Liddle claims. Severe ME is lying in a darkened room, alone, in agonising pain, tube-fed, catheterised, too weak to move or speak.”

Stigma Illogical Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Medical Ethics Graded Exercise Therapy Chronic Illness Stigma False Beliefs Faulty Thinking Exercise Phobia Medicall Unexplained

Author:Tanya Marlow

“The single biggest factor determining recovery and remission from Myalgic Encephalomyelitis (M.E.) at this point is undoubtedly appropriate rest in the early and/or severe stages of the illness. The importance of avoiding overexertion in M.E. can not be overestimated.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis M E Cfs M E Graded Exercise Therapy

Author:Jodi Bassett

“All I ask of all my friends is that they understand this is truly a devastating neurological illness and not just about being a bit tired because its way and above beyond that. One day ME will be unravelled by the many researchers working tirelessly around the world I hope it's in my lifetime!”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis M E Cfs M E

Book:Severe ME : Notes for Carers

Source: Severe ME : Notes for Carers

“ME/CFS has a greater negative impact on functional status and well-being than other chronic diseases, e.g., cancer or lung diseases[8], and is associated with a drastic decrement in physical functioning[9]. In a comparison study[10] ME/CFS patients scored significantly lower than patients with hypertension, congestive heart failure, acute myocardial infarction, and multiple sclerosis (MS), on all of the eight Short Form Health Survey (SF-36)[11] subscales. As compared to patients with depression, ME/CFS patients scored significantly lower on all the scales, except for scales measuring mental health and role disability due to emotional problems, on which they scored significantly higher.”

Chronic Illness Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis M E Cfs M E Chronic Fatigue Neurological Disorder

Author:Frank Twisk

“The people in whom CFS often takes a hold are those driven, workaholic, goal driven, perfectionist, 'never say die' characters. This is because these people ignore the normal cues that make us stop striving - they continue despite symptoms of fatigue and pain in order to achieve. The achievement is at the expense of their health. Furthermore, these personalities are more likely to turn to addictions to mask symptoms in order that they can keep going.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis M E Cfs M E

Book:Diagnosis and Treatment of Chronic Fatigue Syndrome: it's mitochondria, not hypochondria!

Source: Diagnosis and Treatment of Chronic Fatigue Syndrome: it's mitochondria, not hypochondria!

“Everything I thought I understood about disease research, drug development, and the delivery of clinical care has been turned on its head. This isn’t science or medicine as I had come to know them but rather a parade of psychogenic bias, neglect, bad science, flawed public policy, and the political agendas of powerful people and institutions that have sentenced ME patients to the medical equivalent of the most squalid slum in the poorest country on earth. The political decisions taken over the last thirty years have polluted research, perverted clinical care, and shipwrecked ME patients with a life-threatening dose of stigma, disbelief and medically induced harm.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis M E Cfs M E

Author:Mary Dimmock

“Finally, individuals with severe pathological fatigue might experience states that are very different from what a healthy individual experiences when fatigued.”

Fatigue Exhaustion Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis M E Cfs M E

Author:Leonard A. Jason

“Characteristics of CFS/ME include persistent mental and physical fatigue accompanied by a range of neurological, autonomic, neuroendocrine, immune and sleep difficulties (Carruthers et al., 2003). In turn, these manifestations produce a range of functional limitations including severe cognitive impairments (e.g. problems with attention, problem-solving, concentration, memory and verbal communication) and debilitating physical difficulties such as problems with general mobility and self-care, shopping, food-preparation and housekeeping (Taylor & Kielhofner, 2005). These impairments are often acute and enduring, impacting upon an individual’s personal, occupational and social lives.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis M E Cfs M E

Author:Megan A. Arroll

“The diagnostic criteria for myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) define two distinct clinical entities. Cognitive impairment and post-exertional “malaise” (a long-lasting aggravation of typical symptoms, e.g., muscle weakness and cognitive “brain fog”, after minor exertion) are obligatory for the diagnosis ME, while chronic fatigue is the only mandatory symptom for the diagnosis CFS.”

Fatigue Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Malaise M E Cfs M E Chronic Fatigue Neurological Disorder Brain Fog

Author:Frank Twisk

“For 13 years now I have suffered. I have lost my job that I loved, my financial independence, my social life, my friends, my ability to leave the house when I want to or do the things when I want to instead my body does the dictating now.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis M E Cfs M E

Author:Tracey Browett

“I have seen three beautiful young girls in their 30's within the last few years pass away due to this illness, who not only fought their battles with this illness but who played an important role in raising awareness of ME. Yes you can die as a result of having ME if you become at the severe end of it which 25% do.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis M E Cfs M E

Book:Severe ME : Notes for Carers

Source: Severe ME : Notes for Carers

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