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Quote by Mary Dimmock

“Everything I thought I understood about disease research, drug development, and the delivery of clinical care has been turned on its head. This isn’t science or medicine as I had come to know them but rather a parade of psychogenic bias, neglect, bad science, flawed public policy, and the political agendas of powerful people and institutions that have sentenced ME patients to the medical equivalent of the most squalid slum in the poorest country on earth. The political decisions taken over the last thirty years have polluted research, perverted clinical care, and shipwrecked ME patients with a life-threatening dose of stigma, disbelief and medically induced harm.”

Quote by Mary Dimmock

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Mary Dimmock

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“Characteristics of CFS/ME include persistent mental and physical fatigue accompanied by a range of neurological, autonomic, neuroendocrine, immune and sleep difficulties (Carruthers et al., 2003). In turn, these manifestations produce a range of functional limitations including severe cognitive impairments (e.g. problems with attention, problem-solving, concentration, memory and verbal communication) and debilitating physical difficulties such as problems with general mobility and self-care, shopping, food-preparation and housekeeping (Taylor & Kielhofner, 2005). These impairments are often acute and enduring, impacting upon an individual’s personal, occupational and social lives.”

CfsChronic Fatigue SyndromeMyalgic EncephalomyelitisM E CfsM E
Author:Megan A. Arroll
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“The diagnostic criteria for myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) define two distinct clinical entities. Cognitive impairment and post-exertional “malaise” (a long-lasting aggravation of typical symptoms, e.g., muscle weakness and cognitive “brain fog”, after minor exertion) are obligatory for the diagnosis ME, while chronic fatigue is the only mandatory symptom for the diagnosis CFS.”

FatigueCfsChronic Fatigue SyndromeMyalgic EncephalomyelitisMalaiseM E CfsM EChronic FatigueNeurological DisorderBrain Fog
Author:Frank Twisk
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“Many people confuse “chronic fatigue” (which is a symptom of many chronic conditions, including rheumatoid arthritis, fibromyalgia, or lupus) or “general tiredness” (which is lifestyle-related), with the specific illness “chronic fatigue syndrome” (ME/CFS). To clarify the differences, here are some of the major symptoms of ME/CFS: - unexplained physical and mental fatigue for an extended period of time - post-exertional malaise (meaning an inappropriate loss of physical and mental stamina and a worsening of symptoms after any effort) - sleep dysfunction - pain - neurological/cognitive manifestations - autonomic manifestations, such as orthostatic intolerance - neuroendocrine symptoms, such as subnormal body temperature - immune system changes, such as recurrent flu-like symptoms.”

FatigueChronic Fatigue SyndromeMyalgic EncephalomyelitisM E CfsChronic Fatigue
Author:Valerie free
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“Over the years, I have cared for loved ones with advanced Alzheimer, late stage cardiovascular and renal disease and Stage 4 cancer. But none of those experiences prepared me for being a carer for a Severe or Very Severe ME patient. The breadth, severity and unprediciability of the symptoms and dysfunction from one person ro the next and from one day to the next can be hard to comprehend and mainstream medical education doesn't help.”

CfsChronic Fatigue SyndromeMyalgic EncephalomyelitisM E CfsM E
Book:Severe ME : Notes for Carers
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