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Chronic Illness Quotes

Browse 156 quotes about Chronic Illness.

Chronic Illness Quotes

“Emma was 25 years old, but at only 12, when she got her first period, she had become aware that something was wrong with her body. Excruciating pains that felt like sharp shards of glass were cutting her lower abdomen open. Not even the most potent painkillers could alleviate them. They often plagued her for at least one week a month until she collapsed.”

“Over the years I have developed and employed a variety of such coping mechanisms, mostly focusing around a philosophy I call, “Live Because.” “Live Because” is in contrast to what I’ve termed “Live Despite,” which is the idea that people can live rich, full lives in spite of their physical or emotional barriers. “Live Because” takes this a step further by suggesting that in many cases, patients can live a more fulfilling life with their illness than they could ever have done without it. Ehlers-Danlos syndrome has transformed me from a frequently petty and self-absorbed person into the person I am today (still somewhat self-absorbed, but a lot less petty, and with a clearly defined purpose of alleviating whatever suffering I can). I am better because of my illness, and not just in spite of it. But this process was, and still is, a journey. Chronic illness is nearly always accompanied by depression, and the need to constantly remain one step ahead of my illness has left me fearful and exhausted. I could never go through this alone... A part of me will always be angry; such is the process of mourning the pieces of oneself that are lost to chronic disease. I have learned to accept the duality of being bitter and at peace; ignorant and enlightened... while still laying a foundation of hope for the possibility that I can still realize my personal dreams and ambitions, even if not in the exact ways I had expected.”

“Mental illness People assume you aren’t sick unless they see the sickness on your skin like scars forming a map of all the ways you’re hurting. My heart is a prison of Have you tried?s Have you tried exercising? Have you tried eating better? Have you tried not being sad, not being sick? Have you tried being more like me? Have you tried shutting up? Yes, I have tried. Yes, I am still trying, and yes, I am still sick. Sometimes monsters are invisible, and sometimes demons attack you from the inside. Just because you cannot see the claws and the teeth does not mean they aren’t ripping through me. Pain does not need to be seen to be felt. Telling me there is no problem won’t solve the problem. This is not how miracles are born. This is not how sickness works.”

“As the illness attempts to diminish you, destroy you, or distract you, you've got to rely on your sense of style to help you to divert it, to defeat it and transcend it . . . . "illness style." A good synonym might be "strategy" except the word is too cold to describe something that's about being as alive and vibrant as possible.”

“I have another scan this week," I say lightly, hoping to reassure my loved ones that it is safe to rejoin my orbit. There is always another scan, because this is my reality. But the people I know are often busy contending with mildly painful ambition and the possibility of reward. I try to begrudge them nothing, except I'm not alongside them anymore. In the meantime, I have been hunkering down with old medical supplies and swelling resentment. I tried— haven't I tried? — to avoid fights and remember birthdays. I showed up for dance recitals and listened to weight-loss dreams and kept the granularity of my medical treatments in soft focus. A person like that would be easier to love, I reasoned. I try a small experiment and stop calling my regular rotation of friends and family, hoping that they will call me back on their own. _This is not a test. This is not a test._ The phone goes quiet, except for a handful of calls. I feel heavy with strange new grief. Is it bitter or unkind to want everyone to remember what I can't forget? Who wants to be confronted with the reality that we are all a breath away from a problem that could alter our lives completely? A friend with a very sick child said it best: I'm everyone's inspiration and and no one's friend. I am asked all the time to say that, given what I've gained in perspective, I would never go back. Who would want to know the truth? Before was better.”

“That’s the point. This healthy-feeling time now just feels like a tease. Like I’m in this holding pattern, flying in smooth circles within sight of the airport, in super-comfortable first class. But I can’t enjoy the in-flight movie or free chocolate chip cookies because I know that before the airport is able to make room for us, the plane is going to run out of fuel, and we’re going to crash-land into a fiery, agonizing death.”

“It was easier to visit him in the hospital at the height of his illness than to encounter him on the street struggling through this intermediate existence. I wanted to think of illness and recovery as two clear, diametrically opposed states.”

“The medical uncertainty compounds patients' own uncertainty. Because my unwellness did not take the form of a disease I understood, with a clear-cut list of symptoms and a course of treatment, even I at times interpreted it as a series of signs about my very existence. Initially, the illness seemed to be a condition that signified something deeply wrong with me⁠—illness as a kind of semaphore. Without answers, at my most desperate, I came to feel (in some unarticulated way) that if I could just tell the right story about what was happening, I could make myself better. If only I could figure out what the story was, like the child in a fantasy novel who must discover her secret name, I could become myself again. It took years before I realized that the illness was not just my own; the silence around suffering was our society's pathology.”

“Some of us fall through the unseen cracks in the world of health on a bright summer’s day through a run-in with machine or microbe, like Alice down the rabbit hole. Some of us were born this way. And some find out that our genes have hidden within them a ticking time bomb. Waiting. Silently. However we got here, we are now inhabitants of the state of sickness. Our papers for the world of health have been rescinded without notice. Our body-world has been colonised by patriarchs, and we, the natives, should know our place: small folded patient, compliant, silent, not defiant. They seem to believe that our bodies are just an errant version of theirs. That our souls are not woman-shaped on the inside. That it’s not our place to take our space and insist on our inner difference. Their gospel is scribbled down on prescription pads in spider scrawl. They are not to be questioned, especially not with our own heresy.”

“I am, you are, a cell in a bigger living organism. We have been taught to forget this. But our bodies are remembering. We are not the only ones who are suffering. We are not the only ones who are sick. But we are the ones with the power to make a change. The time has come to take back our power to heal from this sickness. This is the time to heal. It is time to purge the toxic masculine from our bodies and beings. And to choose life.”

“Labelling a woman as a hypochondriac is the modern day way of labelling a woman hysterical – the insinuation is that it is all in her mind, she is unstable (mentally and perhaps physically) her opinion and feelings are not to be trusted. Her pain and her concerns are not real. But what if the hypochondriac, the highly sensitive woman, is picking up perfectly on the signs that something is wrong, she is registering the imbalance, that something is wrong, but she mistakes the issue as being in her own body, rather than the body of the world beyond her. She is told to quiet down, that nothing is wrong. But there is, she knows there is. This is why the constant reassurance does little to help her. She is feeling, deep in her bones, in her nerves, in her pulse that something is seriously wrong. Because it is. Her biological system may or may not have gotten sick from it yet, but the signs of a sick world are quickening within her.”

“Appearing nude on film was not easy when I was twenty-six in Body Heat; it was even harder when I was forty-six in The Graduate, on the stage, which is more up close and personal than film. After my middle-age nude scene, though, I unexpectedly got letters from women saying, "I have not undressed in front of my husband in ten years and I'm going to tonight." Or, "I have not looked in the mirror at my body and you gave me permission." These affirmations from other women were especially touching to me because when I began The Graduate I'd just come through a period when I felt a great loss of confidence, when my rheumatoid arthritis hit me hard and I literally couldn't walk or do any of the things that I was so used to doing. It used to be that if I said to my body, "Leap across the room now," it would leap instantly. I don't know how I did it, but I did it. I hadn't realized how much my confidence was based on my physicality. On my ability to make my body do whatever I wanted it to do. I was so consumed, not just by thinking about what I could and couldn't do, but also by handling the pain, the continual, chronic pain. I didn't realize how pain colored my whole world and how depressive it was. Before I was finally able to control my RA with proper medications, I truly had thought that my attractiveness and my ability to be attractive to men was gone, was lost. So for me to come back and do The Graduate was an affirmation to myself. I had my body back. I was back.”

“The secret of making lasting change is to acknowledge and accept that real change takes time and patience. We didn't get chronically ill overnight. We didn't gain weight in one week or even one month. Good chance, it may take us longer than twenty-one days to overcome whatever we're facing. Whether it's something physical, emotional, spiritual, or a combination, we may need to be realistic in our goals for meaningful change to happen. The first step is getting started!”