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Ehlers Danlos Syndrome Quotes

Browse 13 quotes about Ehlers Danlos Syndrome.

Ehlers Danlos Syndrome Quotes

“Everyone saw you lose it,' I whisper, doing my best to mentally block the pain like I have countless times before. It's usually as easy as building a mental wall around the pulsing torment in my body, then telling myself the pain only exists in that box so I can't feel it, but it isn't working so well this time. 'I didn't lose it.' He kicks the door three times when we reach it. 'You shouted and carried me out of there like I mean something to you.' I focus on the scar on his jaw, the stubble on his tan skin, anything to keep from feeling the utter destruction in my shoulder. 'You do mean something to me.' He kicks again. And now everyone knows.”

PainDisabilityVioletInjuredFourth WingViolet SorrengailRebecca YarrosDain AetosEhlers Danlos SyndromeMean Something
Book:Fourth Wing
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“Are you calling me weak?' 'No.' Mira squeezes my hand. 'Just... fragile.' 'That's not any better.' Dragons don't bond fragile women. They incinerate them. 'So she's small.' Mom scans me up and down, taking in the generous fit of the cram belted tunic and pants I selected this morning for my potential execution. I snort. 'Are we just listing my faults now?' 'I never said it was a fault.' Mom turns to my sister. 'Mira, Violet deals with more pain before lunch than you do in an entire week. If any of my children is capable of surviving the Rider's Quadrant, it's her.”

FaultsDisabilityFragileVioletFourth WingViolet SorrengailRebecca YarrosEhlers Danlos SyndromeMira SorrengailGeneral Sorrengail
Book:Fourth Wing
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“You can't keep your seat?' 'No.' It's barely a whisper, and the heat of embarrassment scorches my skin.' 'How the hell can you not?' Her mouth hangs open. 'Because I'm not you"' I shout. She rears back like I've slapped her, our hands breaking apart. 'But you... you look so much stronger now.' 'My joints and muscles are stronger because Imogen makes me lift these horrible weights, but that doesn't... fix me.' Mira blanches. 'No. I didn't mean it like that, Vi. You're not anything that needs to be fixed. I just didn't know you couldn't hold your seat. Why didn't you tell me?' 'Because there's nothing you can do about it.' I force a wry smile. 'There's nothing anyone can do about the way I'm made.”

DisabilityVioletFourth WingViolet SorrengailRebecca YarrosMiraEhlers Danlos SyndromeMira SorrengailThe Way I AmNothing To Fix
Book:Fourth Wing
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“EDS is a scary and challenging diagnosis, but the consequences of not knowing are far greater than that of a correct diagnosis. EDS symptoms can range from the very mild to the extremely severe. One thing is certain, though: If I had received a diagnosis back when my symptoms were mild, I would be living a very different life now. Every single day, in my struggle to actualize the person I still can be, I cannot help but mourn the person I could have been.”

DisabilityChronic IllnessDisability QuotesPatientsInvisible IllnessChronic Illness QuotesEhlers Danlos Syndrome
Author:Michael Bihovsky
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“Hyperextension in the lower extremities, such as knee hyper extension shown here (see figure 5), not only puts added strain on the opposing musculature, but it also leads to added stress on numerous joints and muscles throughout the trunk, spine, shoulders, and even all the way to the cervical spine and tempermandibular joints. Knee hyper extension can cause the foot arches to flatten, the tibia rotate inward, the pelvis to shift and rotate forward, and cause abnormal spinal curvature and excessive forward head positioning. This habitual standing posture can result in what is referred to as upper and lower cross body syndrome (see figure 6). These poor postural habits lead to shortening, weakness and inhibition of key core stabilizers resulting in misalignment and pain in joints. And, what happens at our base of support, sitting or standing, affects the positioning of the rest of the body.”

MedicalPhysical TherapyEhlers Danlos Syndrome
Book:Disjointed Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders
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“One common problem caused by postural faults is forward head position, in which the head is sitting forward of the spine. In this posture, for every inch the head moves forward, the weight of the head on the spine increases by an additional 10 pounds. People whose head is sitting 3 inches forward of their shoulders are now supporting 42 pounds of weight, compared to what is typically 12 pounds in aligned posture. This can occur in both sitting and standing postures. It can pull the spine out of alignment, reduce lung capacity inhibiting complete lung aeration, contribute to a sluggish gastrointestinal system, cause tension headaches, and decrease balance. Most devastating is if forward head posture leads to cervical spine instability, as a result of constant strain on the ligaments which stabilize the neck. A stable cervical spine protects the spinal cord and brainstem. The laxer the ligaments, the stronger the muscles must be support the head and neck.”

MedicalPhysical TherapyEhlers Danlos Syndrome
Book:Disjointed Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders
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