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Quote by Margaret Williams

“The evidence of inflammation in people with ME/CFS is important because the incremental aerobic exercise recommended by the Wessely School and encapsulated in NICE’s Clinical Guideline 53 is contra-indicated in cases of inflamed and damaged tissue and inevitably results in post-exertional relapse with malaise, which is the cardinal symptom of ME/CFS.”

Quote by Margaret Williams

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Margaret Williams

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“Our lord is a magic lord as we all desired, and magical things have sought him from over there, and they all obey his hests." "It is so," said all but Gazic. And Gazic rose up in a pause of their gladness. "Many strange things," he said, "have entered our village, coming from over there. And it may be that human folk are best, and the ways of the fields we know.”

Religion Magic Mundane

Book:The King of Elfland's Daughter

Source: The King of Elfland's Daughter

“The pathophysiological consequences of ME/CFS are multi-systemic and may include: immune and neuroendocrine abnormalities; brain dysfunction and neurocognitive defects; cardiovascular and autonomic disturbances; abnormalities in energy production including mitochondrial dysfunction, and changes in the expression of certain genes.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Neurological Problems

Author:Anthony Komaroff

“CBT is a much publicised and debated psychotherapeutic intervention for ME/CFS….The premise that cognitive therapy (eg. changing ‘illness beliefs’) and graded activity can ‘reverse’ or cure this illness is not supported by post-intervention outcome data. In routine medical practice, CBT has not yielded clinically significant outcomes for patients with ME/CFS.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Cognitive Behavioral Therapy Graded Exercise Therapy Invisible Illness Stigma Cbt Illness Beliefs Graded Exercise Iatrogenic Harm

Author:Anthony Komaroff

“For the last 48 years, myalgic encephalomyelitis (ME) has been formally classified by the World Health Organisation as a neurological disorder but for the last 29 years a group of UK psychiatrists (known as the Wessely School) have denied it exists other than as an aberrant belief; they insist that it is a mental (behavioural) disorder that can be cured by graded exercise and “cognitive re-structuring”.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Neurological Disorder Invisible Illness Stigma Simon Wessely Neurological Problems Wessely School

Author:Margaret Williams

“It’s absolutely retrogressive to suggest [ME] CFS is in the heads of patients. I have seen patients commit suicide, or have been otherwise destroyed, because some professor has diagnosed them as having a psychiatric illness.”

Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Misdiagnosis

Author:Peter Behan

“people with ME/CFS do not have “fatigue as their main symptom”; they have post-extertional fatigability accompanied by malaise as their main symptom (their voluntary muscles do not work properly and are exquisitely painful after exercise)”

Fatigue Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Malaise

Author:Margaret Williams

“(The blood vessels) must be constricted so tight in the brain that little blood gets through. Perhaps it is one of the hormones that constricts blood vessels. Perhaps an infection of the blood vessels. Perhaps it is an excessive sensitivity of the blood vessels to adrenaline….CFS is a devastating physiologic process that undermines the body’s energy and the brain’s cognitive ability….CFS is not…an illness behaviour for lazy people. The consequences of this illness weigh heavily not only on the victim, but also on family, community and society.”

Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Invisible Illness Quotes Illness Stigma

Book:Faces of CFS

Source: Faces of CFS

“It [ME] is one of the most disabling diseases that I care for, far exceeding HIV disease except for the terminal stages.”

Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Misdiagnosis

Author:Daniel L. Peterson

“Individuals are often stigmatized and told their illness isn’t real… People with [ME] CFS face an incredible burden just getting doctors to take their symptoms seriously”

Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Invisible Illness Stigma

Author:Barry E. Hurwitz

“I am so fed up of having to explain to people that Danny is not just tired; if only that were the case. We have lost friends, good friends, when we ran out of patience with explaining that Danny was off school so much, not because he had friendship issues or didn’t like his classes, but because he had an illness that seemed to be eating him up from the inside, despite it not really being visible on the outside.”

Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Invisible Illness M E Cfs M E Invisible Illness Stigma

Author:Sonya Chowdhury