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Quote by Daniel L. Peterson

“It [ME] is one of the most disabling diseases that I care for, far exceeding HIV disease except for the terminal stages.”

Quote by Daniel L. Peterson

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Daniel L. Peterson

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“Individuals are often stigmatized and told their illness isn’t real… People with [ME] CFS face an incredible burden just getting doctors to take their symptoms seriously”

Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Invisible Illness Stigma

Author:Barry E. Hurwitz

“I am so fed up of having to explain to people that Danny is not just tired; if only that were the case. We have lost friends, good friends, when we ran out of patience with explaining that Danny was off school so much, not because he had friendship issues or didn’t like his classes, but because he had an illness that seemed to be eating him up from the inside, despite it not really being visible on the outside.”

Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Invisible Illness M E Cfs M E Invisible Illness Stigma

Author:Sonya Chowdhury

“I am a person suffering from chronic fatigue syndrome and I am appalled that it has been given such a trivial name. Here is a disease that totally disables most of its victims; a disease that causes balance disorders, resulting in some of us requiring wheelchairs, cognitive disorders that leave us unable to perform formerly simple mental tasks, and immune disorders that lay us open to multiple infections and to autoimmune problems. And all the medical profession can come up with to define this syndrome to the general population is "fatigue!”

Fatigue Chronic Illness Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs

Author:Jane Cuozzo

“derelict. my voice cracked and yolk poured out. wind chimes rigid, no breeze, no song. my wings found hidden in your suitcase. pleas for help mistaken for a swan song. i'm stuffing pages from my journal down my throat as kindling. hoping the smoke will get the taste of you out of my mouth. he looks at me from across the room and all i want is to push him against the wall. ravage. ravage. carnage has never been more vogue. is it still art if it doesn't bring you to your knees? lover, let me prey at your altar. let me bare my fangs in praise. don't i look so pretty in a funeral shroud? i keep time with the click of my creaking bones. dance with me under the milky translucence of a world suffocating. how did you find me? i buried myself beneath the cicadas. is a girl trapped in glass still a prize? let me get under your skin. i want to know what your fears taste like. i want to consume.”

Love Religion Sex Fire Feminism Sexuality Lust Womanhood Female Orgasm Religious Symbolism Womanly Sexuality

Book:calloused: a field journal

Source: calloused: a field journal

“It must be noted that there is no proof that it is justified to apply the label somatisation to such conditions as chronic fatigue syndrome and several more illnesses that established medicine has so for failed to explain scientifically. ……Don't hesitate to ask questions about scientific evidence behind this talk about somatisation. Be persistent, because a diagnosis of somatisation is definitely not an innocuous label. It will close various doors and lead (to) treatments that usually get nowhere.”

Myalgic Encephalomyelitis Me Cfs Invisible Illness Stigma Medically Unexplained Symptoms Somatic Symptoms Somatization Somatoform Misfiagnosis

Author:Per Dalén

“I hope you are not saying that (ME)CFS patients are not as ill as HIV patients. I split my clinical time between the two illnesses, and I can tell you that if I had to choose between the two illnesses (in 2009) I would rather have HIV.”

Hiv Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Invisible Illness Invisible Illness Stigma

Author:Nancy G. Klimas

“we see cardiac diastolic dysfunction in almost every case... there are patients whose diastolic dysfunction is so low/poor that they would fit well into a cardiac ward awaiting transplant... The whole idea that you can take a disease like this [M.E./Chronic Fatigue Syndrome] and exercise your way to health is foolishness. It is insane.”

Exercise Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs M E Cfs Graded Exercise Therapy

Author:Paul Cheney

“The Wessely School rejects the significant body of biomedical evidence demonstrating that chronic “fatigue” or “tiredness” is not the same as the physiological exhaustion seen in ME/CFS and persists in believing that they have the right to demand a level of “evidence‐based” definitive proof that ME/CFS is not an “aberrant belief” as they assert, when their biopsychosocial model of “CFS/ME” that perpetuates their own aberrant belief about the nature of ME/CFS has been exposed by other psychiatrists as being nothing but a myth.”

Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Welfare Benefits Chronic Illness Stigma Disability Benefits Dwp Illness Benefts Department Of Work And Pensions Wesseley School

Author:Malcolm hopper

“The renaming of ME to Chronic Fatigue Syndrome (CFS) in 1988, giving misplaced emphasis to “fatigue”, trivializes the substantial disability of the disease 1 – which can extend to the wheelchair or bed-bound requiring 24 hour care ME/CFS is characterized by neurological, immunological, gastrointestinal, cardiovascular and musculoskeletal features – severe forms can present with paresis, seizures, intractable savage headaches and life threatening complications.”

Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Illness Beliefs Wesseley School Aberrant Belief Illness Behaviors Stick Role

Author:Malcolm hopper

“I take no pleasure in, and set no store by, the suggestion that Professor Wessely effectively hijacked the WHO logo to give credence to his own view of ME as a mental illness. Nevertheless, I am uncomfortable that the professor does not appear to be doing his utmost to clear the air on this issue.”

Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Cfs Me Simon Wessely Wessely School

Author:Frederick R.P. Curzon