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Quote by Charlotte Blease

“When it comes to hierarchies of illness, evidence shows that chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME), features at the bottommost end of the medical “favoured” list. In the 1980s, newspapers helped coin the dismissive label “yuppie flu”; today, ME/CFS sufferers are still being referred to psychotherapists to work on their “faulty” illness beliefs.”

Quote by Charlotte Blease

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Charlotte Blease

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“The description given by a leading gastro-enterologist at the Mayo Clinic [of patients with chronic fatigue syndrome] remains accurate: 'the average doctor will see they are neurotic and he will often be disgusted with them'.”

Discrimination Cfs Chronic Fatigue Syndrome Me Cfs Cfs Me Medical Neglect Wessely School Chronic Fatigue Syndrome Stigma

Author:Simon Wessely

“When a misfortune strikes us, we can overcome it either by removing its cause or else by changing the effect it has on our feelings, that is, by reinterpreting the misfortune as good, whose benefit may only later become clear. Religion and art (as well as metaphysical philosophy) strive to effect a change in our feeling, in part by changing the way we judge experiences...and in part by awakening a pleasure in pain, in emotion generally...The more a person tends to reinterpret and justify, the less will he confront the causes of the misfortune and eliminate them; a momentary palliation and narcotization (as used, for example, for a toothache) is also enough for him in more serious suffering. The more the rule of religions and all narcotic arts decrease, the more squarely do men confront the real elimination of the misfortune - of course, this is bad for the tragic poets (there being less and less material for the tragedy, because the realm of the inexorable, invincible fate grows ever smaller) but it is even worse for the priests (for until now they had fed on the narcotization of human misfortunes).”

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Book:Human, All Too Human: A Book for Free Spirits

Source: Human, All Too Human: A Book for Free Spirits

“Validation is needed from the doctor ... once that is granted, the patient may assume the privileges of the sick role (sympathy, time off from work, benefits, etc.).”

Discrimination Disbelief Disdain Cfs Chronic Fatigue Syndrome Me Cfs Medical Neglect Chronic Fatigue Syndrome Stigma Disbain Sick Role

Author:Simon Wessely

“...patient evidence has repeatedly found that cognitive behaviour therapy is ineffective and graded exercise therapy can make the condition worse.”

Exercise Treatment Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Nhs Graded Exercise Therapy Cbt Cfs Me Stopget

Author:Charles Shepherd

“PACE trial is a fault line between the way we did medicine (secretive, clubbable) and the way we should do medicine (transparent, shared)... PACE is turning out to be the science controversy of the decade: it indicts the medical ecosystem of review”

Science Chronic Fatigue Syndrome Medical Profession Me Cfs Medical Research Me Cfs Quotes Pace Trial

Author:Trevor Butterworth

“The new name 'Chronic Fatigue Syndrome' is far too benign. It trivialises. How seriously would you take something called 'Chronic Thirst Syndrome'? And yet, diabetes is a very serious condition. 'Disabling Fatigue and Immune Dysfunction Syndrome' does a bit better; while more research should allow something more specific. (Thompson, 1992:27)”

Cfs Chronic Fatigue Syndrome Me Cfs Me Cfs Quotes Invisible Illness Stigma Invisible Illness Quotes Biopsychosocial

Book:Chronic Fatigue Syndrome

Source: Chronic Fatigue Syndrome

“Mark Vink is a physician in the Netherlands who suddenly fell ill with chronic fatigue syndrome (ME/CFS). He wasn’t just your typical physician; he also happened to have a brown belt in judo, was the former captain of a Dutch national field hockey championship team and was a marathoner and triathlete. In other words, the guy was a stud who loved to test himself physically – the last person anyone would ever expect to get ME/CFS. Or end up bed bound. Or end up using a six yard tramp from his bed to the bathroom to test his exercise capacity. But that’s what happened. Mark Vink’s ME/CFS story – like many stories – is so striking in its suddenness and so devastating in its comprehensive that it beggars the mind to think that anyone could believe his downfall could have other than a physiological cause.”

Exercise Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Me Cfs Quotes Mark Vink

Author:Cort Johnson

“Activities of daily living utilize energy and are in themselves, exercise. These activities may constitute an optimum amount of exercise for some patients or an excessive amount of exercise for others while for some patients, adding a suitable exercise program (exercise therapy) can improve function and quality of life.”

Exercise Activity Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Graded Exercise Therapy

Author:Fred Friedberg

“While there are now fresh moves to revise NICE guidelines on CFS/ME in the United Kingdom, these advances are likely to have been hindered by the scale of epistemic injustices experienced by patients with ME/CFS (NICE 2017). Of the valuable participants in the ongoing discourse about ME/CFS, it is patients who are not only the most vulnerable but have the most to lose.”

Injustice Bias Authoritarianism Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Health Service Stigna

Author:Charlotte Blease

“The severe exacerbation of symptoms following exercise, as seen in CFS patients, is not present in other disorders where fatigue is a predominant symptom such as depression, rheumatoid arthritis, systemic lupus erythematosus, or multiple sclerosis. 10,11”

Exercise Chronic Fatigue Syndrome Me Cfs Invisible Illness Post Exertional Malaise

Author:Jo Nijs