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Quote by Leah Lakshmi Piepzna-Samarasinha

“When I'm talking about disabled writing and the struggles to create spaces for disabled literature—in talks, to other crip writers, to whoever—I tell the story a lot about the fight I got into with an editor in the last weeks before Care Work was going to the printer, where I insisted that the BISAC codes (the codes on the back of the books that tell booksellers what section to place them in) on the back read Disability Studies / Disability Justice / Queer Studies when she wanted them to read Social Studies / Health / Queer Studies. The editor's response was dismissive: "Well, we do have to go with the official BISAC codes," (note: there is one for Disability Studies, and has been for decades), "and I've never seen a disabled section in a bookstore—have you? Of course I had. Modern Times Books, where I was the events coordinator (and cashier) from 2009 to 2011 had one and was known for it. Third Place Books, Left Bank Books, and Elliot Bay Books—my three favorite bookstores in my current city of Seattle—all have robust disability sections and Queer Disability special displays. Anjula Gogia, who ran the Toronto Women's Bookstore for decades, confirmed that they'd had a disability section since the 1980s and it was always one of their best-selling sections. I fought back, pulled the white crip guy (friend) card, and was like, ELI CLARE HAS DISABILITY STUDIES / ACTIVISM ON THE BACK OF BRILLIANT IMPERFECTION. IF HE CAN DO IT, SO CAN I. I DO NOT WANT MY BOOK NEXT TO THE GOUT CURES. We compromised on "disability studies / queer studies. Four years later, Poets.org would ask me to curate a disability justice poets folio for their 2022 theme of "Poetry and Disability Justice." It was a wonderful task, and I ran into the reality that Poets.org, like most poetry databases, didn't have "disability" or "disabled poets" or "Deaf poets" as keywords. As with most poetry databases, the closest you get is "illness" or "the body." Something as simple as having "disability," "disabled poets," and "Deaf poets" as keywords or search terms allows us to find each other, to come together, for disabled and Deaf people searching for words to illuminate our experiences and create a community to find them.”

Quote by Leah Lakshmi Piepzna-Samarasinha

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The Future Is Disabled: Prophecies, Love Notes, and Mourning Songs

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Leah Lakshmi Piepzna-Samarasinha

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“I thought of Care Work as a community in your pocket when you have no crip friends or you are all alone, as so often we are. I have written or co-created nine books, but it wasn't until my fourth book that I started writing unapologetically about disability. It still felt like a risk. As a friend once said, "Everyone wants to write the poem that makes people go "yeah!" and pump their fist at the performance." So much of the time when I'd tried to write, or read poetry about being disabled, about being chronically ill, the opposite happened: instead of wild clapping and screaming, I got met with awkward silence, the nervous laughter, the "I'm not sure if it's OK to laugh," the #SadFace. If you wanted to be the best, to have people love your work, too often if felt like too much of a risk to write and perform crip work. I was able to finally take that risk and write and perform and publish disabled poems in Bodymap, my third book of poetry, because of the collective work in disability justice writing and performance. Because of Sins Invalid and individual disabled BIPOC writers, because there was starting to be a movement of disabled writers and creators, queer and of color, who were creating space to do our work. I could believe there was an audience who was hungry for the work, and I got it. Without that, my writing would have stayed in my journal, stayed in the drafts that didn't make it into the books I published.”

“If society is used to not seeing disabled people in stories, society becomes used to not seeing disabled people in real life. If society is used to not seeing disabled people in real life, society will continue to build a world that makes it exceedingly difficult for disabled people to participate in said world, thus perpetuating the problem.”

“For a while, the rise of sociopolitical discourse both online and in physical spaces felt like slowly breaking these boundaries down one by one: we started to teach each other that everything we knew about gender, or being fat, or poor, or chronically ill, was decided by a system that had no intention of caring for us. But then the fear of being too much slowly began to reinfect all of our minds. We began to second-guess our ability to change the world, so settled with self-optimising instead.”

“Violet Sorrengail, for the record, please tell me the name of the dragon who chose you." I lift my chin. "Tairneanach." The woman grins, shaking her head as she writes down his name. "I can't believe he bonded. Violet, he's a legend." "Andarnaurram." The sweet, high voice of the golden fills my mind. "Andarna for short." I feel the blood rush from my face, and the edges of my vision sway as I pivot on my good ankle, staring back across the fields at where the golden dragon -Andarna- now stands between Tairn's front legs. "Excuse me?" "Violet, are you alright?" the redhead asks, and everyone around me, above me, leans in. "Tell her," the golden insists. "Tairn. What am I supposed to-" I think at him. "Tell the roll-keeper her name," Tairn echoes. "Violet?" the roll keeper repeats. "Do you need a mender?" I turn back to the woman and clear my throat. " And Andarnaurram," I whisper. Her eyes fly wide. "Both dragons?" She squeaks. I nod. And all hell breaks loose. Two dragons. I have...two dragons.”