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Rebecca Skloot

Rebecca Skloot Quotes

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Famous Rebecca Skloot Quotes

“Since the Common Rule says that research subjects must be allowed to withdraw from research at any time, these experts have told me that, in theory, the Lacks family might be able to withdraw HeLa cells from all research worldwide. And in fact, there are precedents for such a case, including one in which a woman successfully had her father’s DNA removed from a database in Iceland. Every researcher I’ve mentioned that idea to shudders at the thought of it.”

Property RightsMedical ResearchHelaHenrietta LacksHuman Cells
Book:The Immortal Life of Henrietta Lacks
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“many scientists have interfered with science in precisely the way courts always worried tissue donors might do. “It’s ironic,” she told me. “The Moore court’s concern was, if you give a person property rights in their tissues, it would slow down research because people might withhold access for money. But the Moore decision backfired—it just handed that commercial value to researchers.” According to Andrews and a dissenting California Supreme Court judge, the ruling didn’t prevent commercialization; it just took patients out of the equation and emboldened scientists to commodify tissues in increasing numbers. Andrews and many others have argued that this makes scientists less likely to share samples and results, which slows research; they also worry that it interferes with health-care delivery.”

Health CareProperty RightsMedical ResearchScientific ProgressGene PatentsJohn MooreMyraid Genetics
Author:Rebecca Skloot
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