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Quote by Rebecca Skloot

“Since the Common Rule says that research subjects must be allowed to withdraw from research at any time, these experts have told me that, in theory, the Lacks family might be able to withdraw HeLa cells from all research worldwide. And in fact, there are precedents for such a case, including one in which a woman successfully had her father’s DNA removed from a database in Iceland. Every researcher I’ve mentioned that idea to shudders at the thought of it.”

Quote by Rebecca Skloot

Work

The Immortal Life of Henrietta Lacks

This book delves into the life and legacy of Henrietta Lacks, focusing on the ethical implications and medical breakthroughs resulting from the use of her cells. more

Author

Rebecca Skloot
Rebecca Skloot

Rebecca Skloot is a freelance writer recognized for her contributions to science and medicine through her compelling storytelling and investigative journalism. Born in September 1972, she has made a significant impact in the field by focusing on the human aspect of scientific research. Skloot's writing often delves into the lives of individuals involved in significant scientific studies, bringing to light the personal stories behind groundbreaking research. more

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“Property breeds lawyers, I said, forbearing to add a belief that unfortunately property now seemed the only thing palpable enough to demand the respect of governments, and perhaps was the generating clout against encroachments on the spiritual protections for speech, assembly, and so on. It might turn out that without the right to possess we are not sure we really have the right to speak and to be.”

“many scientists have interfered with science in precisely the way courts always worried tissue donors might do. “It’s ironic,” she told me. “The Moore court’s concern was, if you give a person property rights in their tissues, it would slow down research because people might withhold access for money. But the Moore decision backfired—it just handed that commercial value to researchers.” According to Andrews and a dissenting California Supreme Court judge, the ruling didn’t prevent commercialization; it just took patients out of the equation and emboldened scientists to commodify tissues in increasing numbers. Andrews and many others have argued that this makes scientists less likely to share samples and results, which slows research; they also worry that it interferes with health-care delivery.”

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