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Being Seen: One Deafblind Woman's Fight to End Ableism

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Elsa Sjunneson

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“Most Deaf kids have home signs; they develop their own ways to get what they need. I have my own, too. My colleagues in the science fiction world who sign can get my attention, can communicate with me if they really need to. A lot of the signs we use aren't "real," but they're the ones I use, and that's why we use them together. (Page 33)”

“Boys’ aggressiveness is increasingly being treated as a medical problem, particularly in schools, a trend that has led to the diagnosing and medicating of boys whose problem may really be that they have been traumatized and influenced by exposure to violence and abuse at home. Treating these boys as though they have a chemical problem not only overlooks the distress they are in but also reinforces their belief that they are “out of control” or “sick,” rather than helping them to recognize that they are making bad choices based on destructive values. I have sometimes heard adults telling girls that they should be flattered by boys’ invasive or aggressive behavior “because it means they really like you,” an approach that prepares both boys and girls to confuse love with abuse and socializes girls to feel helpless.”

“Sometimes disabled people overcome specific moments of ableism— we exceed low expectations, problem-solve lack of access, avoid nursing homes or long-term psych facilities, narrowly escape police brutality and prison. However, I’m not sure that overcoming disability itself is an actual possibility for most of us. Yet in a world that places extraordinary value in cure, the belief that we can defeat or transcend body-mind conditions through individual hard work is convenient. Overcoming is cure’s backup plan.”