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“On 13th December 1988 Brynmor John MP died from ME/CFS. His experience of the illness was all too familiar: ‘Though there is only a slight gradient from our house to the main road, it could have been the North face of the Eiger. I just could not get up it’. He found himself unable to dress; the slightest exertion exhausted him and it took days to regain his strength. He was irritated by the profusion of psychiatric comment and was trying to ensure better understanding of ME/CFS (Perspectives, Summer 1991:28‐30). Brynmor John suddenly collapsed and died as he was leaving the House of Commons gym after having been advised to exercise back to fitness.”

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Malcolm hopper

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“Patient use of herbal/natural remedies should be identified to reveal likely side effects and avoid potential conflicts with prescribed medications. Patients may not know that “natural” does not necessarily mean “better” or “safe.” As with medication, small doses should be used initially with warnings about adverse reactions. Some herbs with pharmacological effects have been traditionally incorporated in the diet, e.g., herbal teas of peppermint, ginger or chamomile for gastrointestinal symptoms or for improving sleep.”

HerbsMe CfsAlternative MedicineHerbal MedicineHerbal RemediesNatural RemediesNatural AlternativesHerbal Supplements
Author:Fred Friedberg
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“The term “myalgic encephalomyelitis” (muscle pain, “myalgic”, with “encephalomyelitis” inflammation of the brain and spinal cord) was first included by the World Health Organization (WHO) in their International Classification of Diseases in 1969. It is ironic that Donald Acheson, who subsequently became the Chief Medical Officer first coined the name in 1956.8 In 1978 the Royal Society of Medicine accepted ME as a nosological organic entity.9 The current version of the International Classification of Diseases—ICD‐10, lists myalgic encephalomyelitis under G.93.3—neurological conditions. It cannot be emphasised too strongly that this recognition emerged from meticulous clinical observation and examination.”

Chronic Fatigue SyndromeMyalgic EncephalomyelitisMe CfsNeurological Disorder
Author:Malcolm Hooper
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“In summary, patients with CFS are not “deconditioned”. Neither their muscle strength nor their exercise capacity is different from that of other sedentary members of the community (>70%). We remain unaware of any incontrovertible evidence that the various “exercise training” programs suggested in previous articles improve either the physiological or clinical status of people with CFS.”

CfsChronic Fatigue SyndromeMyalgic EncephalomyelitisMe CfsGraded Exercise TherapyGraded Exercise
Author:Garry C. Scroop
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“The Medical Research Council’s PACE Trial of behavioural interventions for Chronic Fatigue Syndrome / Myalgic Encephalomyelitis (CFS/ME) attracted considerable opposition from the outset and the Principal Investigators had difficulty in recruiting a sufficient number of participants. PACE is the acronym for Pacing, Activity, and Cognitive behavioural therapy, a randomised Evaluation, interventions that, according to one of the Principal Investigators, are without theoretical foundation. The MRC’s PACE Trial seemingly inhabits a unique and unenviable position in the history of medicine. It is believed to be the first and only clinical trial that patients and the charities that support them have tried to stop before a single patient could be recruited and is the only clinical trial that the Department for Work and Pensions (DWP) has ever funded.”

Chronic Fatigue SyndromeMyalgic EncephalomyelitisMe CfsWelfare BenefitsChronic Illness StigmaDisability BenefitsDwpIllness BeneftsDepartment Of Work And Pensions
Author:Malcolm hopper
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“There is rightful objection to the denial of appropriate investigations and to the nationwide implementation of behavioural modification as the sole management strategy for the nosological disorder ME/CFS. That strategy is believed to be based on (i) the commercial interests of the medical and permanent health insurance industry for which many members of the Wessely School work and (ii) the dissemination of misinformation about ME/CFS by the Wessely School, whose members also act as advisors to UK Government agencies including the DWP, which it is understood has specifically targeted “CFS/ME” as a disorder for which certain State benefits should not be available.”

Chronic Fatigue SyndromeMyalgic EncephalomyelitisMe CfsWelfare BenefitsChronic Illness StigmaDisability BenefitsDwpIllness BeneftsDepartment Of Work And Pensions
Author:Malcolm hopper
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“ME has been classified as a neurological condition at least since 1968 (this should have been 1969)…however, for all these years, sufferers from this awful debilitating illness have been ignored, derided and mistreated…. Many thousands of peer-reviewed scientific papers from researchers around the world demonstrate that ME is a physical disease which has endocrine, immune and cardiovascular effects, as well as neurological symptoms…. It is distinct from chronic fatigue which is a symptom of many diseases….”

Chronic Fatigue SyndromeMyalgic EncephalomyelitisMe CfsChronic FatigueCfs Me
Author:Countess of Mar
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“People who use their religion as a framework to kill people, simply , are not nice people. Yes, that's quite a stand I'm making, but the idea that people are systematically executed because they don't share your God is beyond barbaric. The fact that there are people in our own country who seem to tolerate that, while being intolerant of a Christian's biblical stance regarding gay marriage, makes me want to go to leave the United States and go to a more sensible place, like Texas. There are more things I refuse to tolerate (pretentious music criticism, clove cigarettes, slow-moving ceiling fans, restaurant hostesses who pretend they own the joint, people who walk and text on a crowded sidewalk, Hostess Snowballs, people who drop subzero in their conversation when they aren't talking about the Arctic winds, people who bring their own bedroom pillows onto flights, pharmacists who yell out your prescription in front of other customers, Time Warner Cable, Sting's chest hair) but I'll get into that later.... I may not do that...though, because I refuse to tolerate lists. They're lazy. And listy.”

ReligionListsIntolerance
Book:The Joy of Hate: How to Triumph over Whiners in the Age of Phony Outrage
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“The neurological/cognitive symptoms are more characteristically variable than constant and often have a distinct fatiguing component to them. Especially common are cognitive ‘fog’ or confusion, slowed information processing speed, trouble with word retrieval and speaking or intermittent dyslexia, trouble with writing, reading, and mathematics, and short-term memory consolidation.”

CognitiveChronic Fatigue SyndromeMyalgic EncephalomyelitisMe CfsChronic FatigueCfs MeBrain FogConcentration Problems
Author:Bruce M. Carruthers
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“In general, fatigue is not as severe in depression as in ME/CFS. Joint and muscle pains, recurrent sore throats, tender lymph nodes, various cardiopulmonary symptoms (55), pressure headaches, prolonged post-exertional fatigue, chronic orthostatic intolerance, tachycardia, irritable bowel syndrome, bladder dysfunction, sinus and upper respiratory infections, new sensitivities to food, medications and chemicals, and atopy, new premenstrual syndrome, and sudden onset are commonly seen in ME/CFS, but not in depression. ME/CFS patients have a different immunological profile (56), and are more likely to have a down- regulation of the pituitary/adrenal axis (57). Anhedonia and self- reproach symptoms are not commonly seen in ME/CFS unless a concomitant depression is also present (58). The poor concentra- tion found in depression is not associated with a cluster of other cognitive impairments, as is common in ME/CFS. EEG brain mapping (59,60) and levels of low molecular weight RNase L (21,26) clearly distinguish ME/CFS from depression.”

DepressionChronic Fatigue SyndromeMyalgic EncephalomyelitisMe CfsMisdiagnosisChronic FatigueCfs Me
Author:Bruce M. Carruthers
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