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Quote by Melanie A. Smith

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All of Me

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Melanie A. Smith

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“A hospice nurse, on the advice of a Catholic chaplain decades ago, left the window slightly open to make it easier for one's spirit to travel. Ma had sung with her son twenty-one hours before she passed by him toward that window; indeed she sang until the day she died, just as she said she would, and I believe it was her harmony, not her spirit that first arrived at heaven's door.”

“I am leery of suggesting the idea that endings are controllable. No one ever really has control. Physics and biology and accident ultimately have their way in our lives. But the point is that we are not helpless either. Courage is the strength to recognize both realities. We have room to act, to shape our stories, though as time goes on it is within narrower and narrower confines. A few conclusions become clear when we understand this: that our most cruel failure in how we treat the sick and the aged is the failure to recognize that they have priorities beyond merely being safe and living longer; that the chance to shape one’s story is essential to sustaining meaning in life; that we have the opportunity to refashion our institutions, our culture, and our conversations in ways that transform the possibilities for the last chapters of everyone’s lives.”

“I think of Gould and his essay every time I have a patient with a terminal illness. There is almost always a long tail of possibility, however thin. What’s wrong with looking for it? Nothing, it seems to me, unless it means we have failed to prepare for the outcome that’s vastly more probable. The trouble is that we’ve built our medical system and culture around the long tail. We’ve created a multitrillion-dollar edifice for dispensing the medical equivalent of lottery tickets—and have only the rudiments of a system to prepare patients for the near certainty that those tickets will not win. Hope is not a plan, but hope is our plan.”

“Spirits and ghosts are probably powerless creatures, you know. I know they’re supposed to be able to influence humans — to be able to read their minds, and so on. But they don’t have physical power over people, or objects; I don’t think they can even see them. And what happens when from the other side they try to reach people whose minds are insensitive, and who don’t react? Or who are too sensitive, so they overreact? I’m sure lines get crossed all the time: it must be easy for a ghost to get frustrated and lose interest. Besides, after a while, seeing into people’s minds must get quite boring and annoying. And aren’t ghosts supposed to be bundles of irritation and resentment? No, I dread dying all the more when I think of such an eternally painful existence. If anything, I envy people who can believe in nothingness after death.”

“When there is no way of knowing exactly how long our skeins will run--and when we imagine ourselves to have much more time than we do--our every impulse is to fight, to die with chemo in our veins or a tube in our throats or fresh sutures in our flesh. The fact that we may be shortening or worsening the time we have left hardly seems to register. We imagine that we can wait until the doctors tell us that there is nothing more they can do. But rarely is there nothing more that doctors can do. They can give toxic drugs of unknown efficacy, operate to try to remove part of the tumor, put in a feeding tube if a person can't eat: there's always something. We want these choices. But that doesn't mean we are eager to make the choices ourselves. Instead, most often, we make no choice at all. We fall back on the default, and the default is: Do Something. Fix Something. Is there any way out of this?”