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Disability Visibility: First-Person Stories from the Twenty-first Century

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Alice Wong

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“Ik geloof niet in helden, tenzij ze zich verpleegster noemen. Zij kennen de keerzijde van het krijgshaftige gebalk over 'respect voor elke vonk van leven'. Zij weten wat dat betekent in de praktijk. Zij helpen de onmachtigen en de dementen hun vernederingen van alledag te doorstaan, van voeding tot ontlasting. Het zijn de zaken waar men liever over zwijgt, van politicus tot prelaat. Het potsierlijk gemorste lopend voedsel, de drinkbeker voor kleuters in de handen van een huilende negentigjarige, de onbehandelbare pijnen, de stoma's, de urinezakjes hangend aan een kapstok naast het bed dat je niet meer verlaat, de nooit eindigende tragikomedie van de ontlasting. Dat ganse bittere repertoire van kots en kak.”

RespectHeldDementieBejaardeHulpeloosheidVernederingenVerpleegster
Book:Sprakeloos
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“The risibility of our altruistic 'understanding' is rivalled only by the profound contempt it is designed to conceal. For 'We respect the fact that you are different' read: 'You people who are underdeveloped would do well to hang on to this distinction because it is all you have left' . (The signs of folklore and poverty are excellent markers of difference.) Nothing could be more contemptuous - or more contemptible - than this attitude, which exemplifies the most radical form of incomprehension that exists. It has nothing to do, however, with what Segalen calls 'eternal incomprehensibility' . Rather, it is a product of eternal stupidity - of that stupidity which endures for ever in its essential arrogance, feeding on the differentness of other people. Other cultures, meanwhile, have never laid claim to universality. Nor did they ever claim to be different - until difference was forcibly injected into them as part of a sort of cultural opium war. They live on the basis of their own singularity, their own exceptionality, on the irreducibility of their own rites and values. They find no comfort in the lethal illusion that all differences can be reconciled - an illusion that for them spells only annihilation. To master the universal symbols of otherness and difference is to master the world. Those who conceptualize difference are anthropologically superior - naturally, because it is they who invented anthropology. And they have all the rights, because rights, too, are their invention. Those who do not conceptualize difference, who do not play the game of difference, must be exterminated. The Indians of America, when the Spanish landed, are a case in point. They understood nothing about difference; they inhabited radical otherness. (The Spaniards were not different in their eyes: they were simply gods, and that was that.) This is the reason for the fury with which the Spaniards set about destroying these peoples, a fury for which there was no religious justification, nor economic justification, nor any other kind of justification, except for the fact that the Indians were guilty of an absolute crime: their failure to understand difference. When they found themselves obliged to become part of an otherness no longer radical, but negotiable under the aegis of the universal concept, they preferred mass self-immolation - whence the fervour with which they, for their part, allowed themselves to die: a counterpart to the Spaniards' mad urge to kill. The Indians' strange collusion in their own extermination represented their only way of keeping the secret of otherness.”

RespectContemptAltruismDifferenceOthernessIncomprehension
Book:The Transparency of Evil: Essays in Extreme Phenomena
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“Kindness is not just the absence of being mean or hateful. Being kind entails actively resisting actions, ideas, and institutions that rob others of dignity.”

KindnessRespectDignitySocial JusticeHuman DignityInstitutional RacismInstitutional OppressionInstitutional Abuse
Book:In Defense of Kindness: Why It Matters, How It Changes Our Lives, and How It Can Save the World
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