“I knew you’d know,” Mom said in a stabilizing, more confident, yet still husky voice. A smile broke across her face in the simple relief of her only remaining child not being shocked by the death of her youngest. She smiled genuinely, perhaps for the first time since cradling Dustin’s body as the fire truck alarm blared towards the house in response to her 911 call. Her son had died that morning in her arms as she tried resuscitating him with her own breath, but the first indication of her daughter’s reaction was calm. The child raised to expect death met the first moments of the news with seeming serenity.” BereavementSiblingChildhood MemoriesMuscular DystrophyMyotonic Muscular Dystrophy Book:From My Mother Source: From My Mother
“Her words felt like a new beginning, a turning of a page, and, ominously, rang like the beginning of a final chapter.” End Of LifeTerminal DiseaseMuscular DystrophyDnrVentilatorLife SupportMyotonic Muscular DystrophyMyotonic Dystrophy Book:From My Mother Source: From My Mother
“People need to remember that to balance the federal budget off the backs of the poorest people in the country is simply unacceptable. You don't pull feeding tubes from people. You don't pull the wheelchair out from under the child with muscular dystrophy.” PeopleNeedsChildrenCountryRememberBalanceBudgetsFeedingPoorestTubesWheelchairsMuscular Dystrophy Author:Mike Huckabee
“A lot of times I say to myself, "I wished I could be worthy of all the compliments that people give me sometimes." I'm not inventing anything that's going to stop cancer or muscular dystrophy or anything, but I like to feel that my time and talent is always there for the people that need it. When someone do say something negative, most times I think about it, but it don't bother me that much.” PeopleThinkingNeedsGivingFeelsSometimesTalentNegativeGive MeCancerWorthyBotherMy TimeComplimentInventingMuscular Dystrophy Author:B. B. King
“I started bettysbattle.org, which is a charity in honor of my mom, associated with the Muscular Dystrophy Association, a charity that is near and dear to my heart. We turned to them for resources and information. They were there for us every step of the way, from the day that Mom was diagnosed. I formed a charity in honor of my mom and them. I'm the national ALS ambassador for MDA. I do their telethon every year.” WayYearsHeartStepsInformationMomMy HeartHonorResourcesCharityDearMy MomAlsAssociationEvery StepAmbassadorsMuscular Dystrophy Author:Nancy O'Dell
“If it came to a magic genie, I would ask him for two extra wishes. One would be that no one would have to live with the muscular dystrophy disease or any disease. And the second one would be world peace, that we just stop fighting, talk about things, and we could live in harmony once again, like God intended us to do.” IfsWorldTwoWould BeFightingAsksWishMagicDiseaseHarmonyExtrasGeniesMuscular Dystrophy Author:Mattie Stepanek
“Every year, once a year, in Maryland, I go for a week and overnight camp with about 50 to 60 kids with muscular dystrophy, all ages, seven to 21. And it is really fun. I have some great friends there and wonderful counselors.” YearsKidsAgeFunWonderfulWeekSevenCampsCounselorGreat FriendMarylandMuscular Dystrophy Author:Mattie Stepanek
“We have common enemies today. It's called childhood poverty. It's called cancer. It's called AIDS. It's called Parkinson's. It's called Muscular Dystrophy.” TodayCommonEnemyPovertyChildhoodCancerAidsCancer SurvivorParkinsonParkinson'sCommon EnemyMuscular Dystrophy Author:Jerry Doyle
“Muscular dystrophy ... was never seen until Duchenne described it in the 1850s. By 1860, after his original description, many hundreds of cases had been recognised and described, so much so that Charcot said: 'How is it that a disease so common, so widespread, and so recognisable at a glance - a disease which has doubtless always existed - how is it that it is recognised only now? Why did we need M. Duchenne to open our eyes?'” NeedsSaidEyeCommonCasesDiseaseOriginalsChessDescriptionGlancesMuscular Dystrophy Author:Oliver Sacks