“I knew you’d know,” Mom said in a stabilizing, more confident, yet still husky voice. A smile broke across her face in the simple relief of her only remaining child not being shocked by the death of her youngest. She smiled genuinely, perhaps for the first time since cradling Dustin’s body as the fire truck alarm blared towards the house in response to her 911 call. Her son had died that morning in her arms as she tried resuscitating him with her own breath, but the first indication of her daughter’s reaction was calm. The child raised to expect death met the first moments of the news with seeming serenity.” BereavementSiblingChildhood MemoriesMuscular DystrophyMyotonic Muscular Dystrophy Book:From My Mother Source: From My Mother
“Her words felt like a new beginning, a turning of a page, and, ominously, rang like the beginning of a final chapter.” End Of LifeTerminal DiseaseMuscular DystrophyDnrVentilatorLife SupportMyotonic Muscular DystrophyMyotonic Dystrophy Book:From My Mother Source: From My Mother