“Eighteen months ago, after seeing thirteen different doctors and undergoing multiple tests and investigations, not only was I given a diagnosis of a condition that I didn’t know about or understand, it was an illness I didn’t believe in.” Chronic IllnessChronic Fatigue SyndromeMyalgic EncephalomyelitisMe CfsChronic Illness Stigma Author:Nina Muirhead
“ME sufferers know full well that there is no present cure for this debilitating illness but equally they do not expect or understand why there is substantial denial within the medical profession of the existence of ME/CFS as a physical condition.” Chronic Fatigue SyndromeMyalgic EncephalomyelitisMe CfsMe Cfs QuotesChronic Illness Stigma Author:Nina Muirhead
“ME/CFS is not a rare illness, so how could doctors be getting it so wrong? Have we stopped believing in an entire class of patients for whom we don’t yet have the technology to diagnose or drugs to prescribe?” Chronic Fatigue SyndromeMyalgic EncephalomyelitisMe CfsMe Cfs Quotes Author:Nina Muirhead
“From my experience of ME/CFS there was no psychological component whatsoever, besides which exercise, if anything, was making me worse not better. I was not deconditioned or frightened to exercise. The symptoms were more consistent with a brain tumour or multiple sclerosis. The reality is ME/CFS is a serious, heritable, neurological condition and I was shocked to discover subsequently that my grandmother had died from it aged 42.” Chronic Fatigue SyndromeMyalgic EncephalomyelitisMe CfsNeurological DisorderNeurological Disease Author:Nina Muirhead