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Quote by Nina Muirhead

“ME/CFS is not a rare illness, so how could doctors be getting it so wrong? Have we stopped believing in an entire class of patients for whom we don’t yet have the technology to diagnose or drugs to prescribe?”

Quote by Nina Muirhead

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Nina Muirhead

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“ME is a neuroimmune disease that, contrary to common misconceptions, is not characterised by chronic fatigue, but rather by a severe exacerbation of symptoms which manifest after a minor physical or mental exertion. This hallmark symptom characteristic of ME, known as Post-Exertional Malaise (PEM), can persist for days, weeks or consequently be a the trigger for a relapse or deterioration.”

CfsChronic Fatigue SyndromeMyalgic EncephalomyelitisMe CfsMe Cfs QuotesPost Exertional MalaisePem
Author:Anil van der Zee
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“From my experience of ME/CFS there was no psychological component whatsoever, besides which exercise, if anything, was making me worse not better. I was not deconditioned or frightened to exercise. The symptoms were more consistent with a brain tumour or multiple sclerosis. The reality is ME/CFS is a serious, heritable, neurological condition and I was shocked to discover subsequently that my grandmother had died from it aged 42.”

Chronic Fatigue SyndromeMyalgic EncephalomyelitisMe CfsNeurological DisorderNeurological Disease
Author:Nina Muirhead
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“For ME patients, activity overreaching equals symptom exacerbation, including decreased functional capacity. It’s a predictable action and reaction that is borne out by numerous and replicated physiological studies. Given what we have learned in the past eight years about this illness, it is intellectually embarrassing to suggest that ME is a psychological illness.”

PsychologicalChronic Fatigue SyndromeMyalgic EncephalomyelitisMe CfsChronic Illness QuotesCfs Quotes
Author:Betsy Keller
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“It might sound strange but walking back and forth to the toilet is more difficult than running a marathon. However if you see my lactate levels of 8.0 mmol/l around the 5 minute mark, and 11.8 mmol/l around the 30 minutes mark, both produced by the same exercise, it means that the actual lactate production for this very trivial exercise is 19.8 mmol/l. That is a level that many professional athletes will never / not often reach and that sort of level of lactate makes it easy to understand why this trivial walk is so strenuous an exercise for me and more difficult than running a marathon. And it is therefore no wonder that I have severe loss of muscle power combined with severe muscle pain from this trivial walk to the toilet and back.”

ExerciseChronic Fatigue SyndromeMyalgic EncephalomyelitisMe CfsMe Cfs QuotesGraded Exercise TherapyMuscle Weakness
Author:Mark Vink
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