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Tanya Marlow Biography

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“What about the claim, by the PACE trial, that Graded Exercise Therapy and CBT can treat ME? This is a trial where you could enter moderately ill, get worse in the trial, and be declared ‘recovered’ at the end. Even the recent follow-up study conceded that, long-term, Graded Exercise and CBT are no better for ME than doing nothing. Investigative journalists and academics alike have dismissed the PACE trial as ‘clinical trial amateurism’. Like MS or epilepsy, which were also once wrongly believed to be psychiatric disorders, ME is a neurological disease, and the World Health Organisation lists it as such. I am too weak to walk more than a few metres, needing to lie in bed 21 hours a day. With the little energy I have, I am an ME patient activist.”

Chronic Fatigue SyndromeMyalgic EncephalomyelitisMisdiagnosisEpilepsyCognitive Behavior TherapyNeurological DisorderChronic Illness StigmaCbtPace TrialClinical TrialExercise Therapy
Author:Tanya Marlow
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“Imagine you’re diagnosed with epilepsy: what would you think if you weren’t referred to a specialist but taken to a psychiatrist to treat you for your ‘false illness beliefs’? This is what happens to Myalgic Encephalomyelitis (ME) patients in the UK. They are told to ignore their symptoms, view themselves as healthy, and increase their exercise. The NHS guidelines amalgamate ME and Chronic Fatigue Syndrome, assuming symptoms are caused by deconditioning and ‘exercise phobia’. Sufferers are offered Graded Exercise to increase fitness, and Cognitive Behavioural Therapy (CBT) to rid them of their ‘false illness beliefs’.”

PrejudiceStigmaChronic Fatigue SyndromeMyalgic EncephalomyelitisChronic FatigueFalse AssumptionsChronic Illness StigmaFalse BeliefsMedical MalpracticeIllness StigmaGraded ExerciseUnethical Treatment
Author:Tanya Marlow
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“With a strange logic, [Rod Liddle] asserts that because ME patients deny that they have a psychiatric disorder, this proves they have a psychiatric disorder. Meanwhile, people are quietly dying of ME. ME sufferer Emily Collingridge died, aged 30; Victoria Webster died at just 18. People don’t die from ‘exercise phobia’. ME is not ‘lethargy’ and ‘aches and pains’, as Liddle claims. Severe ME is lying in a darkened room, alone, in agonising pain, tube-fed, catheterised, too weak to move or speak.”

StigmaIllogicalCfsChronic Fatigue SyndromeMyalgic EncephalomyelitisMedical EthicsGraded Exercise TherapyChronic Illness StigmaFalse BeliefsFaulty ThinkingExercise PhobiaMedicall Unexplained
Author:Tanya Marlow
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