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Quote by Todd E. Davenport

“Post-exertional malaise (PEM) is the hallmark clinical feature of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).”

Quote by Todd E. Davenport

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Todd E. Davenport

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“Myalgic Encephalomyelitis is a systemic disease with many systemic features but it is characterised primarily by CNS dysfunction and not by fatigue.”

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Book:The Clinical and Scientific Basis of Myalgic Encephalomyelitis--Chronic Fatigue Syndrome

Source: The Clinical and Scientific Basis of Myalgic Encephalomyelitis--Chronic Fatigue Syndrome

“hierarchies of diseases exist among patients and healthcare professionals...and when it comes to hierarchies of illness, evidence shows that chronic fatigue syndrome (CFS) /myalgic encephalomyelitis (ME), features at the bottommost end of the medical “favoured” list”

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Author:Charlotte Blease

“These reports from the IOM, AHRQ, and NIH demonstrate how much we have learned about ME/CFS and how much we still do not know. We do not understand its pathogenesis, and we do not have a diagnostic test or a cure. However, these recent reports, summarizing information from more than 9000 articles, should put the question of whether ME/CFS is a "real" illness to rest. When skeptical physicians, many of whom are unaware of this literature, tell patients with ME/CFS that "there is nothing wrong," they not only commit a diagnostic error: They also compound the patients' suffering.”

Bias Stigma Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Invisible Illness

Author:Anthony L. Komaroff

“If the stars should appear one night in a thousand years, how would men believe and adore; and preserve for many generations the remembrance of the city of God.”

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Author:Ralph Waldo Emerson

“ME’ as a medical entity was later supplanted in the 1980s by psychiatrists such as Simon Wessely, replaced by the label ‘chronic fatigue syndrome’; a fatiguing syndrome of unknown origin that exists, in part, as a result of dysfunctional illness beliefs, as well as social trends and social care systems that reward illness seeking behaviours.”

Discrimination Chronic Illness Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Me Cfs Quotes Psychologization Simon Wessely Wessely School

Author:Charlotte Blease

“Studies also show that doctors may view ME/CFS patients as hostile or combative when they challenge the incumbent biopsychosocial model of ME or CFS. Yet rather than feeling threatened or worse still, viewing the patient as uncooperative, there is an opportunity to discuss the limitations of medical knowledge. Here, we believe there is an ethical duty for candour and honesty: indeed, where there are clear gaps in medical knowledge the patient voice should have even more standing.”

Chronic Illness Cfs Chronic Fatigue Syndrome Myalgic Encephalomyelitis Me Cfs Me Cfs Quotes Psychologization

Author:Charlotte Blease

“As a doctor who has been bedridden with severe ME for a long period after GET caused a severe relapse from which I have not recovered, I am in a unique position to combine the patient and doctor perspective...”

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Author:Mark Vink

“The deepening corruption of peer view for ME/CFS in the UK continues on wholly unrestrained by evidence, logic, and basic decency.”

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Author:Carolyn Wiltshire

“The claim that patients can recover [from ME/CFS] as a result of CBT and GET is not justified by the data, and is highly misleading to clinicians and patients considering these treatments.”

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Author:Carolyn Wiltshire

“This is not an argument with psychiatry. Mental and physical illness are equally real and horrible. As with any long-term illness, some people with ME/CFS will develop comorbid depression and other mental health problems – where CBT can be of help alongside good quality general management. The argument here is with a flawed model of causation assuming efficacy for CBT and GET while taking no significant account of varying clinical presentations and disease pathways.”

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Author:Charles Shepherd