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Quote by Michele Kerry Travers

“It was some months before I acknowledged to myself that I had not improved, that I wasn't simply tired because I'd gone back to work, that my muscles ached regardless of whether I rested, and that the symptoms had remained a constant presence since their initial onset. Some symptoms such as the muscle pain were becoming worse. I went back to the medical practitioner. I was now diagnosed with post-viral syndrome... After 11 months from the initial onset, the medical practitioner told me that she thought I might have CFS.”

Quote by Michele Kerry Travers

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Michele Kerry Travers

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“The tiredness of M.E. or Chronic Fatigue Syndrome is so different to normal tiredness. We all say "I'm so tired". No you're not because you are still standing. The tiredness of M.E. is so different because it doesn't get better when you rest. It is tiredness through your bones. It is such a profound weariness. It's not due to muscle weakness. It is not loss of motivation or pleasure such as you get in people who are depressed. It is just exhaustion to your bones.”

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“The crucial differentiation between ME and other forms of postviral fatigue syndrome lies in the striking variability of the symptoms not only in the course of a day but often within the hour. This variability of the intensity of the symptoms is not found in post viral fatigue states.”

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“I’m really tired”, you come to understand, is meaningless, giving the impression all will be well with a good rest and that if you’ve ever been tired, you know what it is to be exhausted.”

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“This sort of sickness is a nothingness, really – a state of limbo; neither well enough to be a functioning member of society nor possessing a sign of illness that signals to the world you are sick. There’s no broken arm. Not even a sore throat and hacking cough.”

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“Success becomes sustainable when it stops depending on who does the work and starts depending on how the work is done.”

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Source: Standard Operating Excellence: The Complete Guide to Building, Implementing, and Mastering SOPs

“All I ask of all my friends is that they understand this is truly a devastating neurological illness and not just about being a bit tired because its way and above beyond that. One day ME will be unravelled by the many researchers working tirelessly around the world I hope it's in my lifetime!”

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Book:Severe ME : Notes for Carers

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“ME/CFS has a greater negative impact on functional status and well-being than other chronic diseases, e.g., cancer or lung diseases[8], and is associated with a drastic decrement in physical functioning[9]. In a comparison study[10] ME/CFS patients scored significantly lower than patients with hypertension, congestive heart failure, acute myocardial infarction, and multiple sclerosis (MS), on all of the eight Short Form Health Survey (SF-36)[11] subscales. As compared to patients with depression, ME/CFS patients scored significantly lower on all the scales, except for scales measuring mental health and role disability due to emotional problems, on which they scored significantly higher.”

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Author:Frank Twisk

“The people in whom CFS often takes a hold are those driven, workaholic, goal driven, perfectionist, 'never say die' characters. This is because these people ignore the normal cues that make us stop striving - they continue despite symptoms of fatigue and pain in order to achieve. The achievement is at the expense of their health. Furthermore, these personalities are more likely to turn to addictions to mask symptoms in order that they can keep going.”

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“Everything I thought I understood about disease research, drug development, and the delivery of clinical care has been turned on its head. This isn’t science or medicine as I had come to know them but rather a parade of psychogenic bias, neglect, bad science, flawed public policy, and the political agendas of powerful people and institutions that have sentenced ME patients to the medical equivalent of the most squalid slum in the poorest country on earth. The political decisions taken over the last thirty years have polluted research, perverted clinical care, and shipwrecked ME patients with a life-threatening dose of stigma, disbelief and medically induced harm.”

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Author:Mary Dimmock

“Finally, individuals with severe pathological fatigue might experience states that are very different from what a healthy individual experiences when fatigued.”

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Author:Leonard A. Jason