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Itayi Garande

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“With a strange logic, [Rod Liddle] asserts that because ME patients deny that they have a psychiatric disorder, this proves they have a psychiatric disorder. Meanwhile, people are quietly dying of ME. ME sufferer Emily Collingridge died, aged 30; Victoria Webster died at just 18. People don’t die from ‘exercise phobia’. ME is not ‘lethargy’ and ‘aches and pains’, as Liddle claims. Severe ME is lying in a darkened room, alone, in agonising pain, tube-fed, catheterised, too weak to move or speak.”

“A heated and often bitter debate persists over whether chronic fatigue syndrome (or myalgic encephalomyelitis (or the postviral fatigue syndrome) is physical or psychological. Although many doctors avoid controversy by stating the obvious—namely, that the mind-body split is artificial and all diseases have physical and mental components—what is really at issue is whether this illness is real or imaginary.”

“PVFS (post-viral fatigue syndrome) This term was introduced during the eariy 1980s in Britain as an alternative to ME. It remains a useful description for anyone whose illness can clearly be traced back to an acute viral infection. The drawback to PVFS is that it cannot be used to describe cases where some other factor (e.g. vaccination or pesticide) acted as the principal trigger.”

“It was some months before I acknowledged to myself that I had not improved, that I wasn't simply tired because I'd gone back to work, that my muscles ached regardless of whether I rested, and that the symptoms had remained a constant presence since their initial onset. Some symptoms such as the muscle pain were becoming worse. I went back to the medical practitioner. I was now diagnosed with post-viral syndrome... After 11 months from the initial onset, the medical practitioner told me that she thought I might have CFS.”

“The tiredness of M.E. or Chronic Fatigue Syndrome is so different to normal tiredness. We all say "I'm so tired". No you're not because you are still standing. The tiredness of M.E. is so different because it doesn't get better when you rest. It is tiredness through your bones. It is such a profound weariness. It's not due to muscle weakness. It is not loss of motivation or pleasure such as you get in people who are depressed. It is just exhaustion to your bones.”