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Quote by Darlene Ouimet

“My sister only has one side of the story but she is sure that she knows the whole story because that is how the dysfunctional system works. We don’t question everyone or even consider that there may be another side to the story but instead automatically believe the one who has the most power in the relationship.”

Quote by Darlene Ouimet

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Darlene Ouimet

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“Many doctors (and medical students) display uncertainty about whether or not CFS/ME is real…Patients with CFS/ME often experience suspicion by health professionals…The (often unintentional) marginalization of many CFS/ME patients represents a failure in medical professionalism, one that may lead to further ethical and practical consequences both for progressive research into CFS/ME and for ethical care... With one exception, doctors attending the seminar were either defensive or silent. In their eyes, the ME patients present were conforming to stereotype (angry, unscientific, unreasonable) and therefore they – the doctors – would not engage with them. Paradoxically, these doctors were themselves conforming to another stereotype, as described by the speaker: ‘Knowledge-formation is also influenced by social and cultural factors. Such encounters have an inherent power differential; there is significant potential…to be unjust from an epistemic point of view.”

CfsChronic Fatigue SyndromeMyalgic EncephalomyelitisMe CfsMarginalizationInvisible Illness StigmaPower ImbalanceIatrogenicUnethical TreatmentPower Differential
Author:Charotte Blease
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