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Alzheimers Quotes

Browse 105 quotes about Alzheimers.

Alzheimers Quotes

“Offering care means being a companion, not a superior. It doesn’t matter whether the person we are caring for is experiencing cancer, the flu, dementia, or grief. If you are a doctor or surgeon, your expertise and knowledge comes from a superior position. But when our role is to be providers of care, we should be there as equals.”

“Even though people experiencing dementia become unable to recount what has just happened, they still go through the experience—even without recall. The psychological present lasts about three seconds. We experience the present even when we have dementia. The emotional pain caused by callous treatment or unkind talk occurs during that period. The moods and actions of people with dementia are expressions of what they have experienced, whether they can still use language and recall, or not.”

“Alzheimer's is not about the past - the successes, the accolades, the accomplishments. They offer only context and are worthless on places like Pluto. Alzheimer's is about the present and the struggle, the scrappy brawl, the fight to live with a disease. It's being in the present, the relationships, the experiences, which is the core of life, the courage to live in the soul.”

“Years from now, I’ll be sitting in my wheelchair in the brightest spot in Amsterdam Park, next to the old wooden swings, catching a bit of sun. Next to me, on the new bench that some future mayor will have put there, will be my caregiver who came from a faraway country. She’ll know very little Hebrew, and at my old age, I’ll also remember only a few words—in Hebrew or at all. By then, my memory will have crumbled like an old biscuit left in a coat pocket since last winter, and every time my caregiver calls me “Papi,“ I’ll think she really is my daughter. Those moments in which the past is erased and replaced by an invented history will be my most meaningful ones. They will be what keeps me alive.”

“Biomedicine locates sickness in a specific place in an individual body: a headache, a stomachache a torn knee, lung cancer. Medical anthropologists instead locate sickness and health in three interconnected bodies: the political, the social, and the physical. The prevailing political economy impacts the distribution of sickness and health in a society and the means available to heal those who are sick. For example, poor individuals worldwide are more exposed to toxins that make them sick, while the rich stay healthier. The social body constructs the meanings and experiences surrounding particular physical states. It determines the ideal physical body, legitimizing biomedical practices like plastic surgery to attain it. The social body also determines the boundaries of the physical body. Some cultures locate sickness not in individuals but instead in families or communities. As any caregiver knows, we live the sickness too. And while biomedicine can cure diseases it flounders with permanent hurts, troubles of the mind, states present from birth or that are incurable or progressive. In biomedicine, these states are stigmatized and feared. We medical anthropologists have a term for this: social death.”

“Butterfly Kisses Aged imperfections stitched upon my face years and years of wisdom earned by His holy grace. Quiet solitude in a humble home all the family scattered now like nomads do they roam. Then a gift sent from above a memory pure and tangible wrapped in innocence and unquestioning love. A butterfly kiss lands gently upon my cheek from an unseen child a kiss most sweet. Heaven grants grace and tears follow as youth revisits this empty hollow.”

“So about an hour later we are in the taxi shooting along empty country roads towards town. The April light is clear as an alarm. As we pass them it gives a sudden sense of every object existing in space on its own shadow. I wish I could carry this clarity with me into the hospital where distinctions tend to flatten and coalesce. I wish I had been nicer to him before he got crazy. These are my two wishes.”

“I had grown up thinking of life as a series of linear decisions that if made properly would land me on some distant safe shore where I would finally enjoy the fruits of my labor. Now that I was getting a glimpse of that shore I was struck by the inanity of such an equation. My mother was never going to get another chance to do anything else. She did not have the capacity for regrets, nor was she even able to enjoy the comfort of nostalgia or fond memories--her mind had leaked away too imperceptibly to allow for the clarity to look back on her life and wish she had done things differently. As I continued to worry over what sort of future I was setting myself up for, she seemed a painful cautionary tale that life was not a savings plan, accrued now for enjoyment later. I was alive now. My responsibility was to live now as fully as possible.”

“Diagnosis doesn't mean you are dying tomorrow. Keep living. You won't lose your emotional memory. You'll still be capable of understanding love and joy. You might not remember what I said 5 minutes ago or even who I am but you'll remember how I made you feel. You are more than what you can remember.”

“From my book, Care for the Carer, An Alzheimer's Memoir "Is there a cure?" Jane asked repeatedly. This simple sentence had several possible meanings: Jeff, I'm slipping, hold me. Jeff, I'm sinking, save me. Jeff, I'm scared, protect me. I wanted to hug her or even to pick her up and rock her in my arms....to tell her "I'm here with you always," to admit to myself, "I'm scared too.”

“You spend your life hoarding memories against the day you'll lack the energy to go out and make new ones, because that's the comfort of the old age. The ability to look back at your life and know that you left your mark on the world. But I'm losing my memories, it's like someone's broken into my piggy bank and is robbing me one penny at a time. It's happening so slowly, I can hardly tell what's missing.”

“But I knew he wouldn't kiss me. Not tonight. Not like this. There was too much between us now, all the words and near misses. All the potential, the alternate futures that would stretch out before us in an unending spiral, all built on what happened in this moment. I held his fiery gaze and remembered the five-oh, the half-and-half, the promises I'd whispered to myself in the dawn light. I might lose all my memories one day, but that wouldn't keep me from making them.”

“I read of a Buddhist teacher who developed Alzheimer's. He had retired from teaching because his memory was unreliable, but he made one exception for a reunion of his former students. When he walked onto the stage, he forgot everything, even where he was and why. However, he was a skilled Buddhist and he simply began sharing his feelings with the crowd. He said, "I am anxious. I feel stupid. I feel scared and dumb. I am worried that I am wasting everyone's time. I am fearful. I am embarrassing myself." After a few minutes of this, he remembered his talk and proceeded without apology. The students were deeply moved, not only by his wise teachings, but also by how he handled his failings. There is a Buddhist saying, "No resistance, no demons.”

“The dominant narrative is a horror story. People with Alzheimer's are perceived as zombies, bodies without minds, waiting for valiant researchers to find a cure. For Alice and me, the story was different. Alzheimer's was a time of healing and magic. Of course, there is loss with dementia, but what matters is how we approach our losses and our gains. Reframing dementia as a different way of being, as a window into another reality, lets people living in that state be our teachers — useful, true humans who contribute to our collective good, instead of scary zombies.”

“BIDEN: “Look, folks,” the president told the adoring crowd after his wife handed him the microphone, “you know, there, uh — I shouldn’t say this, but my brother always uses lines from movies. There was a famous movie by John Wayne, and— and he’s working for the, uh, the Northern military, trying to get the Apaches back on the reservation, and they were lying like hell to him. And they’re all sitting on a bluff, and John Wayne was sitting with two Indian — they were, they were tr — Apaches. And one of them looked at John Wayne and said, ‘These guys are nothing but lying, dog-faced pony soldiers.’ ” The crowd roared and laughed. “Except, Trump’s just a liar,” Biden added. No such line was ever said in any John Wayne movie.”

“Then there was the Trumpiness of it all. A candidate just didn’t get a whole lot out of debating Trump. Even if you were beating his ass, you would lose part of your soul in that debate. Trump was such a pathological liar that it was hard for anyone to maintain the nature of what they imagined themselves to be. Trump always took you down with him.”

“A snapshot memory, circa 1955: I'm draped over Dad's shoulder, bouncing along in time with his stride. It's a hot day and we're strolling through a fairground. Beside us, Verna clings to Mom's hand. A cob of corn has slipped from my sweaty clutches, and I'm shrieking at full lung capacity to have it retrieved. Bobbing over Dad's shoulder, I can see that tasty morsel - sticky with grit, no doubt - receding into the distance, and I'm furious. My parents, facing the other direction, are oblivious to my rising howls of protest. Big sister ignores me. Curious onlookers wander by, but I'm not at all self-conscious. I want that cob of corn, and I want it now! Nothing else matters... I learned soon enough that my parents would never react to my verbal outbursts unless they were facing me. If they couldn't see my face, it didn't count. I'm not sure when that realization dawned, but I know it was early. I recall, as a small child, running into another room to tug on Mom's arm. I knew instinctively that shouting would be useless. From my infancy, the deaf-hearing dynamic shaped every part of our mother-child communication. Specifics elude me; I only knew that I understood her, and she understood me. Most likely, we used a blend of speaking, signs, and gestures. If I had to describe it, I'd call it mother-talk, that intimate connection that happens between mothers and their offspring. You know how they just understand each other? Well, that's how it was, with us. Excerpt from Patricia Conrad's Gentle into the Darkness, p. 68”

“I Understand Mom The fog wraps around her mind bits and pieces of tattered thought become blank within her eyes minutes ago is gone, the sadness inside. Reaching for a wonderful memory that was just an hour ago you fight so hard to bring it back until you finally let it go. I’m sorry, I don’t remember as the tears reach her face tears roll down a beautiful smile while your days are being erased. I understand Mom; I’m here for you there’s blessings at our door God is here, He will guide us through with His love and so much more.”

“I'm in awe of people who deal with Alzheimer's, because they have to deal with death 10 times over, year after year.”

“When someone you love has dementia, you too experience a form of anticipatory grief, but yours may extend over a longer period of time (for some, as long as 20 years) and be socially unrecognized and surrounded by uncertainty.”